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Re: [IP] Frustrated, need to vent!



 If you are on disability do you have Medicare coverage? Medicare covers a pump
and supplies and if you qualify I think you can get help with the difference
after Medicare. Just a guess.

Sent from my iPad

> On Jan 25, 2014, at 9:07 PM, Lola <email @ redacted> wrote:
> 
> You can order it online or get certain places to order it. Buy it from Canada
> even. Just do some searches.
> Or try laxaday. They sell a cheap kind at walmart. Or see if you can get it
> covered under disability.
> 
> Lolita
> 
> <3
> 
> Sent from my iPhone
> 
>> On Jan 25, 2014, at 8:48 PM, SomeoneSomewhere <email @ redacted> wrote:
>> 
>> Last I was told domperidone is not approved by the FDA and can not be sold
 > here. My GI suggested I go to Mexico to get it. He's the same GI that wanted
to
> put in a g-tube. Maybe I should have taken him up on that.
>> 
>>> On Saturday, January 25, 2014 6:39:51 PM, Lola wrote:
>>> Sounds like your on the right track.
>>> You have a GREAT idea. Video yourself !!! What better way. Or yes take the
>> docs
>>> for a walk.
>>> See what they say then !!
>>> I hear ya about not wanting yet another doc. If you have a stomach doc
>> already
>>> ask for domperidone. It's no wY at all as bad as reglan. The worst side
>> effect
>>> will be that it doesn't do anything at all.
>>> 
>>> Try the weights. Maybe one day that 1/4 mile will seem like kids play !
>>> 
>>> Lolita
>>> 
>>> <3
>>> 
>>> Sent from my iPhone
>>> 
>>>> On Jan 25, 2014, at 8:00 PM, SomeoneSomewhere <email @ redacted> wrote:
>>>> 
>>>> Thanks.
>>>> I am aware that calories in - calories out = weight loss. According to my
>>> basal metabolic rate I would have to eat 640-690 calories a day to lose 2
> lbs
>> a
>>> week, which is what is recommended. I just don't know if I can wait 15
> weeks
>> or
>>> more to lose 25% of my body weight which is what they say helps to improve
>>> diabetes. I am going downhill faster than that. I never looked at the fiber
>>> content of glucerna. :(
>>>> I have tried Reglan (metoclopramine). That is one evil drug. It gave me
>>> severe side effects in 2 days. I still take it if my stomach is truly
> backed
>> up
>>> and I smell like rotten food, but on a prn basis. Usually instead of stuff
>> going
>>> down though it just makes me vomit. On the other hand, at least I am not in
>> so
>>> much pain if I vomit it up.
>>>> I have a 3 lb weight. I will use that for now. I try to walk to the
>> dumpster
>>> or to my car (about the same distance) once or twice a day. My mailbox is
>>> another story. It is about 1/4 mile away back and forth. I struggle to get
>> there
>>> and back. But I force myself every few days to otherwise my mail lady will
>> send
>>> my mail to the post office which is even worse. I did my yearly allotment
> of
>> 10
 >>> PT sessions a year. I don't get more until October. :( I kept falling
asleep
>>> during it. Embarrassing to say the least. They did give me some resistance
>> bands
>>> that I do use for my weak hips and shoulders, probably not as faithfully as
> I
>>> should. I also try to clean my house for a minute or two every time I get
> up
>> to
>>> refill my drink. That too exhausts me.
>>>> If I wanted to deal with more doctors, I would ask to do another cardiac
>>> stress test, which I failed last time in 5 minutes 2 years ago. Good thing
>>> though, is I don't have any coronary blockages! I just don't want to deal
>> with
>>> another doctor. I am seriously thinking about asking my dietician or my dr
> to
>>> take a short walk with me so they can see what happens. Either that or
>>> beg/borrow/steal a camcorder and take them a video of it. Wonder if I can
> do
>> a
>>> selfie video on my iPhone? When I exercise, I end up doing deep in breaths
>> and
>>> pursing exhalation. I have tried to concentrate on taking more even slower
>>> breaths but it hasnt worked.
>>>> I have been to the ER at least once a month for the last year, sometimes
>>> more. I swore they would keep me on more than one occasion and they didnt.
> As
>>> much as I hate hospitals being in one for observation and/or testing for a
>> week
>>> or so would probably help me a lot.
>>>> As far as my insulin is concerned. I take 50u of levemir at 9 am, and 50u
>> at
>>> 9pm. I take Novolog if I am over 150 on a sliding scale.
>>>> 
>>>>> On Saturday, January 25, 2014 4:33:08 PM, Lola wrote:
>>>>> In order to lose weight - when our bodies are working - you need to spend
>>>> more
>>>>> calories than you eat.
>>>>> Fiber (glucerna has 3 gm 12% daily) can make your gastroparesis worse.
> (
>>> have
>>>>> it I know).
>>>>> If your eating mostly liquids don't cut out fat. You need that.
>>>>> Don't eat a lot at once.
>>>>> Eat small meals. Even a fruit.
>>>>> It's so very hard to exercise but push yourself. If you do one minute
> today
>>>> do
>>>>> 1.5 tmrw. Then 2.
>>>>> 
>>>>> Exercise makes you feel good ...
>>>>> I have lung function at 42% I know how hard it is to walk. I can't walk n
>>>> talk.
>>>>> Be admitted if you have to. Tell the hospital your at your wits end and
>>> need
>>>>> help. They can and should teach you everything.
>>>>> 
>>>>> Are you on gastro meds ?
>>>>> 
>>>>> Drink water. And then more.
>>>>> Show your doctor your exercising trying etc to do what she wants ...
>>> Actually
>>>>> work with her. And either it'll work or you can say SEE it didn't work.
>>>>> 
>>>>> Walking and other exercises actually help gastro too.
>>>>> Go to walmart and buy 1 5 lb dumbbell. It'll cost 5$. You can use it
>>> sitting
>>>>> down laying down.
>>>>> You can actually use different muscles depending if your sitting it
> laying.
>>>>> 
>>>>> You find you need less insulin too if you work at it.
>>>>> I lift 5 lbs for ten minutes a day and I've actually been able to
>> decrease
>>> my
>>>>> insulin ratio. After 1 week !!
>>>>> 
>>>>> Are you on long acting shots ?
>>>>> It sounds like you really have no more choices than to do what the docs
>>> said.
>>>>> I'd do what they want just to prove it doesn't work.
>>>>> 
>>>>> And like I said ... If it does ....
>>>>> Lolita
>>>>> 
>>>>> <3
>>>>> 
>>>>> Sent from my iPhone
>>>>> 
>>>>>> On Jan 25, 2014, at 2:54 PM, Urb Anism <email @ redacted> wrote:
>>>>>> 
 >>>>>> Whoa bottled juice....okay! And taste is not an issue at this point,
this
>>>>>> is an attempt to meet nutritive challenges. I'd prefer not to eat fat
> free
>>>>>> Greek yogurt all the time, but what can one do? Put ginger in it? Sure.
>> Try
>>>>>> some kale carrot ginger with the dial on ELEVEN! Or some chard
> (extracted)
>>>>>> with Asian pear and chipotle.
>>>>>> 
>>>>>> Pomegranate jicama romaine. Butternut squash cinnamon peach.
>>>>>> 
>>>>>> Wow.
>>>>>> 
 >>>>>>> On Saturday, January 25, 2014, SomeoneSomewhere <email @ redacted>
wrote:
>>>>>>> 
>>>>>>> I have tried juicing. I would rather buy it in a bottle. Nothing I ever
>>>>>>> juiced tasted good. In fact, most tasted like dirt. :)
>>>>>>> 
>>>>>>>> On 1/25/2014 10:42 AM, Urb Anism wrote:
>>>>>>>> 
 >>>>>>>> I have a *question*. What about juicing/extracting? I know those can
be
>>>>>>>> expensive, but...I'm just trying to think of something. Extracting
>>> removes
>>>>>>>> the bulk of fiber from food, just juicing would pulverize it so fine
>> that
>>>>>>>> it would be liquid.
>>>>>>>> 
>>>>>>>> Won't be easy. I have Gastroparesis also, and despaired. I drank apple
>>>>>>>> cider vinegar (what??) for an entirely different purpose--it helped
>>>>>>>> my Gastroparesis instead, by a fluke. Weird.
>>>>>>>> 
>>>>>>>> I hope YOU find your solution, by trial and error, by happenstance,
>>>>>>>> through
>>>>>>>> good fortune, good advice--whatever it takes.
>>>>>>>> 
>>>>>>>> I'm not recommending anything, but I wish you well.
>>>>>>>> 
>>>>>>>> B
>>>>>>>> 
>>>>>>>> 
>>>>>>>> 
>>>>>>>> On Saturday, January 25, 2014, SomeoneSomewhere
>>>>>>>> <email @ redacted<javascript:_e({}, 'cvml', 'email @ redacted');>>
>>>>>>>> wrote:
>>>>>>>> 
>>>>>>>> I don't post here much and I don't know who else to vent to so I hope
>>>>>>>>> you all don't mind. Please keep in mind, I am not looking for
> judgement
>>>>>>>>> for the choices I am making right now. If you have such, please keep
>>>>>>>>> them to yourself.
>>>>>>>>> 
>>>>>>>>> My diabetes (last a1c 9.9), neuropathy (lots of untreated pain),
 >>>>>>>>> gastroparesis (lots of untreated vomiting because I am limited to
very
>>>>>>>>> few foods
>> <http://www.emilysstomach.com/2013/01/gastroparesis-diet-from-mayo.html>
>>>>>>>>> not to mention the food allergies I have), neurogenic bladder (peeing
>>>>>>>>> myself all the time or cant pee at all) and my blood pressure etc are
>>>>>>>>> all out of control. I have been to dr after dr trying to get help and
>> as
>>>>>>>>> one dr put it frankly, if I am not going to help myself (by losing
>>>>>>>>> weight and getting my a1c down etc) there is nothing she can or will
> do
 >>>>>>>>> for me. This dr told me that she expects me to vigorously exercise
for
 >>>>>>>>> the next 8 weeks until I see her again. I told her I need to take
baby
>>>>>>>>> steps and she huffed and said well when you are ready you just let me
 >>>>>>>>> know. I can't sit up without my blood pressure raising by 40-50
points
>>>>>>>>> and it makes me woozy and so I have to stay in bed half the time. The
>>>>>>>>> other half the time is because I am in so much pain, I am exhausted
>>>>>>>>> because I sleep an hour or so at a time. I can't walk more than 30
>> yards
>>>>>>>>> to take out my garbage without being out of breath and so exhausted
>> when
 >>>>>>>>> I get back I fall asleep. My PCP called me into her office because
she
>>>>>>>>> has received similar letters from other dr's she has referred me to
>>>>>>>>> lately. They have also boiled things down to my problems being
>>>>>>>>> psychologically based.
>>>>>>>>> 
>>>>>>>>> I do have an adrenal tumor which is sporadically producing
 >>>>>>>>> norepinephrine and my aldosterone levels are either borderline high
or
>>>>>>>>> almost nill. My cortisol level likewise is not giving consistent
>> numbers
>>>>>>>>> and I am waiting for a 24 hour cortisol test to come back. This is
> part
>>>>>>>>> of the reason I am seeing so many specialists. I am convinced my
>>>>>>>>> diabetes is so out of control because of my adrenal gland or some
> other
>>>>>>>>> hormone causing things to truly be out of my control. Back in Sept, I
>>>>>>>>> was forced into a psychiatric ward under the threat of being
> petitioned
>>>>>>>>> by the court because my diabetes is out of control and it must be my
>>>>>>>>> fault. I was screamed at twice by the medical doctor there for
> stealing
>>>>>>>>> food, hiding food you name it.
>>>>>>>>> Several doctors suggested an insulin pump, however my insurance does
>> not
>>>>>>>>> cover one yet they cover the supplies. So I contacted the Charles Ray
 >>>>>>>>> III Association and they said they would sell me a refurbished one
for
>>>>>>>>> $1,360 cash. I am on disability and that is twice what I get a month,
>>>>>>>>> and I don't qualify for a credit card. I have sold a lot of my things
>>>>>>>>> trying to save for it but instead the money has gone to Glucerna. My
>>>>>>>>> insurance won't pay for that either unless I have a feeding tube.
>>>>>>>>> My blood sugar has bordered on 600 many times in the last few months
>> and
>>>>>>>>> my blood pressure spikes puts me at imminent risk of a heart attack
> or
>> a
>>>>>>>>> stroke.
>>>>>>>>> 
>>>>>>>>> I called my insurance about bariatric surgery and they said I don't
>>>>>>>>> qualify because my BMI is slightly too low (34 and it has to be 35)
> and
>>>>>>>>> because they require that I prove for 6 months that I exercise and I
>> eat
>>>>>>>>> fruits and veggies.
>>>>>>>>> I don't know what else to do except starve myself. In the last 10
> days
>> I
>>>>>>>>> have eaten either nothing at all, including juice or glucerna or when
> I
>>>>>>>>> have had a single Glucerna, I stop losing weight. I have lost some
>>>>>>>>> weight but I am stuck and I have gained 2 lbs back from drinking 1
>>>>>>>>> Glucerna a day the last 2 days. Honestly, I am contemplating taking
>> meth
>>>>>>>>> to lose weight, and I abhor drugs.
>>>>>>>>> 
>>>>>>>>> On top of it all, I am quickly losing my vision. I can't even read a
>>>>>>>>> book. My CDE gave me two paperbacks and I told her I couldn't read
> them
>>>>>>>>> and she insisted that my vision will fluctuate and I will be able to
>>>>>>>>> read them. I was so upset tonight I tore up one of those books. I
> would
>>>>>>>>> have never done that ever before. I value books.
>>>>>>>>> I know this sounds drastic but I am going to die if I don't do
>> something
>>>>>>>>> and dr's wont help me. I have switched drs many times and I get this
 >>>>>>>>> same attitude from all of them. Either doctors are too ignorant
and/or
>>>>>>>>> lazy to see if something is wrong with me that is out of my control,
> or
>>>>>>>>> something is essentially wrong with me and I don't deserve to be
>> treated
>>>>>>>>> and to live.
>>>>>>>>> 
 >>>>>>>>> I am just stuck between a rock and a hard place and I need help and
no
>>>>>>>>> one will help me. I really don't want to die.
>>>>>>>>> 
 >>>>>>>>> Again, not looking for judgement. Reasonable advice will be
considered
>>>>>>>>> but please keep in mind I have multiple extremely complicated things
>>>>>>>>> going on.
>>>>>>>>> 
>>>>>>>>> Louree
>>>>>>>>> .
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>>>>>>>> .
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>>>>> .
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>>>> .
>>>> Follow us at https://www.twitter.com/insulinpumpers
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>>> .
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>> .
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> .
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