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Re: [IP] Frustrated, need to vent!



Sounds like your on the right track. 
 You have a GREAT idea. Video yourself !!! What better way. Or yes take the docs
for a walk.
See what they say then !! 

 I hear ya about not wanting yet another doc. If you have a stomach doc already
ask for domperidone. It's no wY at all as bad as reglan. The worst side effect
will be that it doesn't do anything at all.

Try the weights. Maybe one day that 1/4 mile will seem like kids play ! 

Lolita

<3

Sent from my iPhone

> On Jan 25, 2014, at 8:00 PM, SomeoneSomewhere <email @ redacted> wrote:
> 
> Thanks.
> 
 > I am aware that calories in - calories out = weight loss. According to my
basal metabolic rate I would have to eat 640-690 calories a day to lose 2 lbs a
week, which is what is recommended. I just don't know if I can wait 15 weeks or
more to lose 25% of my body weight which is what they say helps to improve
diabetes. I am going downhill faster than that. I never looked at the fiber
content of glucerna. :(
> 
 > I have tried Reglan (metoclopramine). That is one evil drug. It gave me
severe side effects in 2 days. I still take it if my stomach is truly backed up
and I smell like rotten food, but on a prn basis. Usually instead of stuff going
down though it just makes me vomit. On the other hand, at least I am not in so
much pain if I vomit it up.
> 
 > I have a 3 lb weight. I will use that for now. I try to walk to the dumpster
or to my car (about the same distance) once or twice a day. My mailbox is
another story. It is about 1/4 mile away back and forth. I struggle to get there
and back. But I force myself every few days to otherwise my mail lady will send
my mail to the post office which is even worse. I did my yearly allotment of 10
PT sessions a year. I don't get more until October. :( I kept falling asleep
during it. Embarrassing to say the least. They did give me some resistance bands
that I do use for my weak hips and shoulders, probably not as faithfully as I
should. I also try to clean my house for a minute or two every time I get up to
refill my drink. That too exhausts me.
> 
 > If I wanted to deal with more doctors, I would ask to do another cardiac
stress test, which I failed last time in 5 minutes 2 years ago. Good thing
though, is I don't have any coronary blockages! I just don't want to deal with
another doctor. I am seriously thinking about asking my dietician or my dr to
take a short walk with me so they can see what happens. Either that or
beg/borrow/steal a camcorder and take them a video of it. Wonder if I can do a
selfie video on my iPhone? When I exercise, I end up doing deep in breaths and
pursing exhalation. I have tried to concentrate on taking more even slower
breaths but it hasnt worked.
> 
 > I have been to the ER at least once a month for the last year, sometimes
more. I swore they would keep me on more than one occasion and they didnt. As
much as I hate hospitals being in one for observation and/or testing for a week
or so would probably help me a lot.
> 
 > As far as my insulin is concerned. I take 50u of levemir at 9 am, and 50u at
9pm. I take Novolog if I am over 150 on a sliding scale.
> 
> On Saturday, January 25, 2014 4:33:08 PM, Lola wrote:
> > In order to lose weight - when our bodies are working - you need to spend
> more
>> calories than you eat.
 > > Fiber (glucerna has 3 gm 12% daily) can make your gastroparesis worse. (
have
>> it I know).
>> If your eating mostly liquids don't cut out fat. You need that.
>> Don't eat a lot at once.
>> Eat small meals. Even a fruit.
> > It's so very hard to exercise but push yourself. If you do one minute today
> do
>> 1.5 tmrw. Then 2.
>> 
>> Exercise makes you feel good ...
> > I have lung function at 42% I know how hard it is to walk. I can't walk n
> talk.
 > > Be admitted if you have to. Tell the hospital your at your wits end and
need
>> help. They can and should teach you everything.
>> 
>> Are you on gastro meds ?
>> 
>> Drink water. And then more.
 > > Show your doctor your exercising trying etc to do what she wants ...
Actually
>> work with her. And either it'll work or you can say SEE it didn't work.
>> 
>> Walking and other exercises actually help gastro too.
 > > Go to walmart and buy 1 5 lb dumbbell. It'll cost 5$. You can use it
sitting
>> down laying down.
>> You can actually use different muscles depending if your sitting it laying.
>> 
>> You find you need less insulin too if you work at it.
 > > I lift 5 lbs for ten minutes a day and I've actually been able to decrease
my
>> insulin ratio. After 1 week !!
>> 
>> Are you on long acting shots ?
 > > It sounds like you really have no more choices than to do what the docs
said.
>> I'd do what they want just to prove it doesn't work.
>> 
>> And like I said ... If it does ....
>> Lolita
>> 
>> <3
>> 
>> Sent from my iPhone
>> 
>>> On Jan 25, 2014, at 2:54 PM, Urb Anism <email @ redacted> wrote:
>>> 
>>> Whoa bottled juice....okay! And taste is not an issue at this point, this
>>> is an attempt to meet nutritive challenges. I'd prefer not to eat fat free
>>> Greek yogurt all the time, but what can one do? Put ginger in it? Sure. Try
>>> some kale carrot ginger with the dial on ELEVEN! Or some chard (extracted)
>>> with Asian pear and chipotle.
>>> 
>>> Pomegranate jicama romaine. Butternut squash cinnamon peach.
>>> 
>>> Wow.
>>> 
>>>> On Saturday, January 25, 2014, SomeoneSomewhere <email @ redacted> wrote:
>>>> 
>>>> I have tried juicing. I would rather buy it in a bottle. Nothing I ever
>>>> juiced tasted good. In fact, most tasted like dirt. :)
>>>> 
>>>>> On 1/25/2014 10:42 AM, Urb Anism wrote:
>>>>> 
>>>>> I have a *question*. What about juicing/extracting? I know those can be
 >>>>> expensive, but...I'm just trying to think of something. Extracting
removes
>>>>> the bulk of fiber from food, just juicing would pulverize it so fine that
>>>>> it would be liquid.
>>>>> 
>>>>> Won't be easy. I have Gastroparesis also, and despaired. I drank apple
>>>>> cider vinegar (what??) for an entirely different purpose--it helped
>>>>> my Gastroparesis instead, by a fluke. Weird.
>>>>> 
>>>>> I hope YOU find your solution, by trial and error, by happenstance,
>>>>> through
>>>>> good fortune, good advice--whatever it takes.
>>>>> 
>>>>> I'm not recommending anything, but I wish you well.
>>>>> 
>>>>> B
>>>>> 
>>>>> 
>>>>> 
>>>>> On Saturday, January 25, 2014, SomeoneSomewhere
>>>>> <email @ redacted<javascript:_e({}, 'cvml', 'email @ redacted');>>
>>>>> wrote:
>>>>> 
>>>>> I don't post here much and I don't know who else to vent to so I hope
>>>>>> you all don't mind. Please keep in mind, I am not looking for judgement
>>>>>> for the choices I am making right now. If you have such, please keep
>>>>>> them to yourself.
>>>>>> 
>>>>>> My diabetes (last a1c 9.9), neuropathy (lots of untreated pain),
>>>>>> gastroparesis (lots of untreated vomiting because I am limited to very
>>>>>> few foods
>>>>>> <http://www.emilysstomach.com/2013/01/gastroparesis-diet-from-mayo.html>
>>>>>> not to mention the food allergies I have), neurogenic bladder (peeing
>>>>>> myself all the time or cant pee at all) and my blood pressure etc are
>>>>>> all out of control. I have been to dr after dr trying to get help and as
>>>>>> one dr put it frankly, if I am not going to help myself (by losing
>>>>>> weight and getting my a1c down etc) there is nothing she can or will do
>>>>>> for me. This dr told me that she expects me to vigorously exercise for
>>>>>> the next 8 weeks until I see her again. I told her I need to take baby
>>>>>> steps and she huffed and said well when you are ready you just let me
>>>>>> know. I can't sit up without my blood pressure raising by 40-50 points
>>>>>> and it makes me woozy and so I have to stay in bed half the time. The
>>>>>> other half the time is because I am in so much pain, I am exhausted
>>>>>> because I sleep an hour or so at a time. I can't walk more than 30 yards
>>>>>> to take out my garbage without being out of breath and so exhausted when
>>>>>> I get back I fall asleep. My PCP called me into her office because she
>>>>>> has received similar letters from other dr's she has referred me to
>>>>>> lately. They have also boiled things down to my problems being
>>>>>> psychologically based.
>>>>>> 
>>>>>> I do have an adrenal tumor which is sporadically producing
>>>>>> norepinephrine and my aldosterone levels are either borderline high or
>>>>>> almost nill. My cortisol level likewise is not giving consistent numbers
>>>>>> and I am waiting for a 24 hour cortisol test to come back. This is part
>>>>>> of the reason I am seeing so many specialists. I am convinced my
>>>>>> diabetes is so out of control because of my adrenal gland or some other
>>>>>> hormone causing things to truly be out of my control. Back in Sept, I
>>>>>> was forced into a psychiatric ward under the threat of being petitioned
>>>>>> by the court because my diabetes is out of control and it must be my
>>>>>> fault. I was screamed at twice by the medical doctor there for stealing
>>>>>> food, hiding food you name it.
>>>>>> 
>>>>>> Several doctors suggested an insulin pump, however my insurance does not
>>>>>> cover one yet they cover the supplies. So I contacted the Charles Ray
>>>>>> III Association and they said they would sell me a refurbished one for
>>>>>> $1,360 cash. I am on disability and that is twice what I get a month,
>>>>>> and I don't qualify for a credit card. I have sold a lot of my things
>>>>>> trying to save for it but instead the money has gone to Glucerna. My
>>>>>> insurance won't pay for that either unless I have a feeding tube.
>>>>>> 
>>>>>> My blood sugar has bordered on 600 many times in the last few months and
>>>>>> my blood pressure spikes puts me at imminent risk of a heart attack or a
>>>>>> stroke.
>>>>>> 
>>>>>> I called my insurance about bariatric surgery and they said I don't
>>>>>> qualify because my BMI is slightly too low (34 and it has to be 35) and
>>>>>> because they require that I prove for 6 months that I exercise and I eat
>>>>>> fruits and veggies.
>>>>>> 
>>>>>> I don't know what else to do except starve myself. In the last 10 days I
>>>>>> have eaten either nothing at all, including juice or glucerna or when I
>>>>>> have had a single Glucerna, I stop losing weight. I have lost some
>>>>>> weight but I am stuck and I have gained 2 lbs back from drinking 1
>>>>>> Glucerna a day the last 2 days. Honestly, I am contemplating taking meth
>>>>>> to lose weight, and I abhor drugs.
>>>>>> 
>>>>>> On top of it all, I am quickly losing my vision. I can't even read a
>>>>>> book. My CDE gave me two paperbacks and I told her I couldn't read them
>>>>>> and she insisted that my vision will fluctuate and I will be able to
>>>>>> read them. I was so upset tonight I tore up one of those books. I would
>>>>>> have never done that ever before. I value books.
>>>>>> 
>>>>>> I know this sounds drastic but I am going to die if I don't do something
>>>>>> and dr's wont help me. I have switched drs many times and I get this
>>>>>> same attitude from all of them. Either doctors are too ignorant and/or
>>>>>> lazy to see if something is wrong with me that is out of my control, or
>>>>>> something is essentially wrong with me and I don't deserve to be treated
>>>>>> and to live.
>>>>>> 
>>>>>> I am just stuck between a rock and a hard place and I need help and no
>>>>>> one will help me. I really don't want to die.
>>>>>> 
>>>>>> Again, not looking for judgement. Reasonable advice will be considered
>>>>>> but please keep in mind I have multiple extremely complicated things
>>>>>> going on.
>>>>>> 
>>>>>> Louree
>>>>>> .
>>>>>> Follow us at https://www.twitter.com/insulinpumpers
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>>>>> .
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