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Re: [IP] Frustrated, need to vent!



Thanks.

I am aware that calories in - calories out = weight loss. According to 
my basal metabolic rate I would have to eat 640-690 calories a day to 
lose 2 lbs a week, which is what is recommended. I just don't know if I 
can wait 15 weeks or more to lose 25% of my body weight which is what 
they say helps to improve diabetes. I am going downhill faster than 
that. I never looked at the fiber content of glucerna. :(

I have tried Reglan (metoclopramine). That is one evil drug. It gave me 
severe side effects in 2 days. I still take it if my stomach is truly 
backed up and I smell like rotten food, but on a prn basis. Usually 
instead of stuff going down though it just makes me vomit. On the other 
hand, at least I am not in so much pain if I vomit it up.

I have a 3 lb weight. I will use that for now. I try to walk to the 
dumpster or to my car (about the same distance) once or twice a day. My 
mailbox is another story. It is about 1/4 mile away back and forth. I 
struggle to get there and back. But I force myself every few days to 
otherwise my mail lady will send my mail to the post office which is 
even worse. I did my yearly allotment of 10 PT sessions a year. I don't 
get more until October. :( I kept falling asleep during it. 
Embarrassing to say the least. They did give me some resistance bands 
that I do use for my weak hips and shoulders, probably not as 
faithfully as I should. I also try to clean my house for a minute or 
two every time I get up to refill my drink. That too exhausts me.

If I wanted to deal with more doctors, I would ask to do another 
cardiac stress test, which I failed last time in 5 minutes 2 years ago. 
Good thing though, is I don't have any coronary blockages! I just don't 
want to deal with another doctor. I am seriously thinking about asking 
my dietician or my dr to take a short walk with me so they can see what 
happens. Either that or beg/borrow/steal a camcorder and take them a 
video of it. Wonder if I can do a selfie video on my iPhone? When I 
exercise, I end up doing deep in breaths and pursing exhalation. I have 
tried to concentrate on taking more even slower breaths but it hasnt 
worked.

I have been to the ER at least once a month for the last year, 
sometimes more. I swore they would keep me on more than one occasion 
and they didnt. As much as I hate hospitals being in one for 
observation and/or testing for a week or so would probably help me a 
lot.

As far as my insulin is concerned. I take 50u of levemir at 9 am, and 
50u at 9pm. I take Novolog if I am over 150 on a sliding scale.

On Saturday, January 25, 2014 4:33:08 PM, Lola wrote:
 > In order to lose weight - when our bodies are working - you need to spend
more
> calories than you eat.
 > Fiber (glucerna has 3 gm 12% daily) can make your gastroparesis worse. ( have
> it I know).
> If your eating mostly liquids don't cut out fat. You need that.
> Don't eat a lot at once.
> Eat small meals. Even a fruit.
>
 > It's so very hard to exercise but push yourself. If you do one minute today
do
> 1.5 tmrw. Then 2.
>
> Exercise makes you feel good ...
 > I have lung function at 42% I know how hard it is to walk. I can't walk n
talk.
>
 > Be admitted if you have to. Tell the hospital your at your wits end and need
> help. They can and should teach you everything.
>
> Are you on gastro meds ?
>
> Drink water. And then more.
>
 > Show your doctor your exercising trying etc to do what she wants ... Actually
> work with her. And either it'll work or you can say SEE it didn't work.
>
> Walking and other exercises actually help gastro too.
>
 > Go to walmart and buy 1 5 lb dumbbell. It'll cost 5$. You can use it sitting
> down laying down.
> You can actually use different muscles depending if your sitting it laying.
>
> You find you need less insulin too if you work at it.
>
 > I lift 5 lbs for ten minutes a day and I've actually been able to decrease my
> insulin ratio. After 1 week !!
>
> Are you on long acting shots ?
>
 > It sounds like you really have no more choices than to do what the docs said.
> I'd do what they want just to prove it doesn't work.
>
> And like I said ... If it does ....
> Lolita
>
> <3
>
> Sent from my iPhone
>
>> On Jan 25, 2014, at 2:54 PM, Urb Anism <email @ redacted> wrote:
>>
>> Whoa bottled juice....okay! And taste is not an issue at this point, this
>> is an attempt to meet nutritive challenges. I'd prefer not to eat fat free
>> Greek yogurt all the time, but what can one do? Put ginger in it? Sure. Try
>> some kale carrot ginger with the dial on ELEVEN! Or some chard (extracted)
>> with Asian pear and chipotle.
>>
>> Pomegranate jicama romaine. Butternut squash cinnamon peach.
>>
>> Wow.
>>
>>> On Saturday, January 25, 2014, SomeoneSomewhere <email @ redacted> wrote:
>>>
>>> I have tried juicing. I would rather buy it in a bottle. Nothing I ever
>>> juiced tasted good. In fact, most tasted like dirt. :)
>>>
>>>> On 1/25/2014 10:42 AM, Urb Anism wrote:
>>>>
>>>> I have a *question*. What about juicing/extracting? I know those can be
>>>> expensive, but...I'm just trying to think of something. Extracting removes
>>>> the bulk of fiber from food, just juicing would pulverize it so fine that
>>>> it would be liquid.
>>>>
>>>> Won't be easy. I have Gastroparesis also, and despaired. I drank apple
>>>> cider vinegar (what??) for an entirely different purpose--it helped
>>>> my Gastroparesis instead, by a fluke. Weird.
>>>>
>>>> I hope YOU find your solution, by trial and error, by happenstance,
>>>> through
>>>> good fortune, good advice--whatever it takes.
>>>>
>>>> I'm not recommending anything, but I wish you well.
>>>>
>>>> B
>>>>
>>>>
>>>>
>>>> On Saturday, January 25, 2014, SomeoneSomewhere
>>>> <email @ redacted<javascript:_e({}, 'cvml', 'email @ redacted');>>
>>>> wrote:
>>>>
>>>> I don't post here much and I don't know who else to vent to so I hope
>>>>> you all don't mind. Please keep in mind, I am not looking for judgement
>>>>> for the choices I am making right now. If you have such, please keep
>>>>> them to yourself.
>>>>>
>>>>> My diabetes (last a1c 9.9), neuropathy (lots of untreated pain),
>>>>> gastroparesis (lots of untreated vomiting because I am limited to very
>>>>> few foods
>>>>> <http://www.emilysstomach.com/2013/01/gastroparesis-diet-from-mayo.html>
>>>>> not to mention the food allergies I have), neurogenic bladder (peeing
>>>>> myself all the time or cant pee at all) and my blood pressure etc are
>>>>> all out of control. I have been to dr after dr trying to get help and as
>>>>> one dr put it frankly, if I am not going to help myself (by losing
>>>>> weight and getting my a1c down etc) there is nothing she can or will do
>>>>> for me. This dr told me that she expects me to vigorously exercise for
>>>>> the next 8 weeks until I see her again. I told her I need to take baby
>>>>> steps and she huffed and said well when you are ready you just let me
>>>>> know. I can't sit up without my blood pressure raising by 40-50 points
>>>>> and it makes me woozy and so I have to stay in bed half the time. The
>>>>> other half the time is because I am in so much pain, I am exhausted
>>>>> because I sleep an hour or so at a time. I can't walk more than 30 yards
>>>>> to take out my garbage without being out of breath and so exhausted when
>>>>> I get back I fall asleep. My PCP called me into her office because she
>>>>> has received similar letters from other dr's she has referred me to
>>>>> lately. They have also boiled things down to my problems being
>>>>> psychologically based.
>>>>>
>>>>> I do have an adrenal tumor which is sporadically producing
>>>>> norepinephrine and my aldosterone levels are either borderline high or
>>>>> almost nill. My cortisol level likewise is not giving consistent numbers
>>>>> and I am waiting for a 24 hour cortisol test to come back. This is part
>>>>> of the reason I am seeing so many specialists. I am convinced my
>>>>> diabetes is so out of control because of my adrenal gland or some other
>>>>> hormone causing things to truly be out of my control. Back in Sept, I
>>>>> was forced into a psychiatric ward under the threat of being petitioned
>>>>> by the court because my diabetes is out of control and it must be my
>>>>> fault. I was screamed at twice by the medical doctor there for stealing
>>>>> food, hiding food you name it.
>>>>>
>>>>> Several doctors suggested an insulin pump, however my insurance does not
>>>>> cover one yet they cover the supplies. So I contacted the Charles Ray
>>>>> III Association and they said they would sell me a refurbished one for
>>>>> $1,360 cash. I am on disability and that is twice what I get a month,
>>>>> and I don't qualify for a credit card. I have sold a lot of my things
>>>>> trying to save for it but instead the money has gone to Glucerna. My
>>>>> insurance won't pay for that either unless I have a feeding tube.
>>>>>
>>>>> My blood sugar has bordered on 600 many times in the last few months and
>>>>> my blood pressure spikes puts me at imminent risk of a heart attack or a
>>>>> stroke.
>>>>>
>>>>> I called my insurance about bariatric surgery and they said I don't
>>>>> qualify because my BMI is slightly too low (34 and it has to be 35) and
>>>>> because they require that I prove for 6 months that I exercise and I eat
>>>>> fruits and veggies.
>>>>>
>>>>> I don't know what else to do except starve myself. In the last 10 days I
>>>>> have eaten either nothing at all, including juice or glucerna or when I
>>>>> have had a single Glucerna, I stop losing weight. I have lost some
>>>>> weight but I am stuck and I have gained 2 lbs back from drinking 1
>>>>> Glucerna a day the last 2 days. Honestly, I am contemplating taking meth
>>>>> to lose weight, and I abhor drugs.
>>>>>
>>>>> On top of it all, I am quickly losing my vision. I can't even read a
>>>>> book. My CDE gave me two paperbacks and I told her I couldn't read them
>>>>> and she insisted that my vision will fluctuate and I will be able to
>>>>> read them. I was so upset tonight I tore up one of those books. I would
>>>>> have never done that ever before. I value books.
>>>>>
>>>>> I know this sounds drastic but I am going to die if I don't do something
>>>>> and dr's wont help me. I have switched drs many times and I get this
>>>>> same attitude from all of them. Either doctors are too ignorant and/or
>>>>> lazy to see if something is wrong with me that is out of my control, or
>>>>> something is essentially wrong with me and I don't deserve to be treated
>>>>> and to live.
>>>>>
>>>>> I am just stuck between a rock and a hard place and I need help and no
>>>>> one will help me. I really don't want to die.
>>>>>
>>>>> Again, not looking for judgement. Reasonable advice will be considered
>>>>> but please keep in mind I have multiple extremely complicated things
>>>>> going on.
>>>>>
>>>>> Louree
>>>>> .
>>>>> Follow us at https://www.twitter.com/insulinpumpers
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>>>> .
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