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Re: [IP] Completely bummed


Quite frankly--and I wouldn't recommend this if I hadn't done it for nearly
two years--you can use infusion sets for more than three days. *It's not
ideal, unlike the rest of a poor diabetic's life.* People who live in
a perfectly insured, well-funded world will be shocked and appalled. And
will chew you out. Over here in the real world, however...

I extended a few months of generously donated sets to two years because I
was dead serious about staying on the pump, uninsured, too sick to work.
Donators are lifesavers, right? I know that. But even they couldn't supply
two years worth of pump supplies. So.

Using sets an extra day (or ten!) can help when both supplies and cash are
low. It's your choice. This is an emergency option that with care, can make
your supplies last longer.

Meanwhile, blessings, good luck, and joy to you and your precious son! You
are wealthy indeed.


On Friday, January 24, 2014, Rick Priore <email @ redacted> wrote:

> Being a type 1 since I was 9 years old and now going on 43 I finally let it
> get to me. I always find myself struggling to get supplies mainly quick
> sets my insurance charges an arm and a leg I'm sure just like everyone else
> and I like a lot of other people fall into the category of the working
> poor. I had help from a few members on here and I feel like they were angel
> sent from heaven so tonight as I was switching sites I realize I'm
> completely out of supplies a box of old Kwikset I have I opened and had
> never seen a connecting and like this before so as I reach for it that's
> when it hit me I have one 9 millimeter Kwikset left which they tend to not
> work very well on me because im sowie I normally use a 6 millimeter so I
> call mini Med to see if they could send me emergency supply which will last
> me for 6 days since I change every 3 days and I waited for 47 minutes for
> them to answer the phone and the person that got on the phone was
> completely oblivious to anything I was trying to explain to her it sounded
> like she was reading directly from a manual trying to solve my problems so
> now lol I'm sitting here trying to figure out how in the world I'm going to
> get supplies after spending close to 2,000 dollars to move me and my son
> into an apartment from which I was staying with a friend for 7 months yes
> its very very difficult to try and raise a five year old in someone else's
> house and also deal with the everyday stress and worry you have of the
> disease if anyone could offer up any kind of suggestions or help I would
> greatly appreciate it.
> .
> Follow us at https://www.twitter.com/insulinpumpers
> Make a long URL short at http://type1.org
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