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[IPu] Fw: [IPp] Our 15 Minutes



Hi All,
Apologies to those on the POP list.  Worth reading to compare "medical 
realities" in the US vs here ...
Janette
----- Original Message ----- 
From: "Rachel A" <email @ redacted>
Sent: Sunday, October 21, 2007 1:00 AM
Subject: [IPp] Our 15 Minutes


> Here is a story done on the local families dealing with Type 1 Diabetes.
> The pic is of me reducing Cole's basal before he went out to ride his bike
> with the photographer.
>
> http://www.dcourier.com/1.BigArticlePhoto.asp?p=48798a.jpg
>
> http://www.dcourier.com/main.asp?SectionID=1&subsectionID=1&articleID=48798
>
> Families struggle with disease: Walk aims to raise money, awareness
> By T.M. SHULTZ, The Daily Courier
>
>
>    <http://www.dcourier.com/1.BigArticlePhoto.asp?p=48798a.jpg> + click to
> enlarge
> <http://www.dcourier.com/1.BigArticlePhoto.asp?p=48798a.jpg>  Rachel
> Allbright checks the insulin pump of her 9-year-old son, Cole Neufeld,
> before he takes a bike ride in Skull Valley Tuesday evening.
> The Daily Courier/Nathaniel Kastelic
>
>
>
> Friday, October 19, 2007
>
> Imagine stabbing yourself in the finger every couple of hours.
>
> Imagine giving yourself shots several times a day or at least every three
> days.
>
> Imagine doing complicated math computations before you put anything in 
> your
> mouth or exert yourself in any way.
>
>
> Now imagine that you're a child doing all this, and imagine that it will
> never stop.
>
> Some families in the Prescott area do not have to imagine any of this. 
> They
> live it every day.
>
> The disease is Type 1 diabetes and it often strikes in childhood, although
> adults can get it, too.
>
> In Type 1 diabetes, the body does not make any insulin or makes very 
> little.
> The body needs insulin to convert carbohydrates into energy. Without
> insulin, the body turns on itself in an effort to get the energy it needs.
> Without the proper treatment, death is the only outcome. Even with
> treatment, the risk of death from all causes is twice as great among 
> people
> with all types of diabetes than it is for people without diabetes, says 
> the
> National Diabetes Information Clearinghouse.
>
> Another type of diabetes, called Type 2 diabetes, mainly occurs in adults,
> although in recent years, more and more children are getting it. Experts
> think that is happening because more children are overweight. Obesity is
> often a trigger for Type 2 diabetes.
>
> In Type 2 diabetes, the body does not use insulin as effectively as it
> should. However, with Type 2 diabetes, proper diet, exercise and weight 
> loss
> usually can control the disease without having to resort to shots and 
> needle
> pricks throughout the day.
>
> "This whole pricky-finger thing is really a pain in the butt," said
> 9-year-old Cole Neufeld of Skull Valley. Cole has had Type 1 diabetes 
> since
> he was 2 years old. "In fact, this whole diabetes thing is a pain in the
> butt."
>
> His mother, Rachel Allbright, sits in her mom's living room - where she 
> and
> Cole live while she finishes nursing school - and laughs, surprised by her
> son's bluntness.
>
> The two will walk in today's Step Out to Fight Diabetes event on the
> Yavapai/Prescott Indian Reservation. Planners hope to raise money to look
> for a cure for the deadly - and expensive - disease, whether Type 1 or 
> Type
> 2.
>
> "A bottle of insulin costs about $70," says LaDawn Dalton, a Prescott 
> Valley
> mother of four boys who have Type 1 diabetes.
>
> Originally all four boys were getting several shots a day as well as 
> finger
> pricks to test their blood for insulin levels. Now they're all on insulin
> pumps, as Cole is. The pumps require only one shot every three days, when
> the user changes the pump site. Finger pricks throughout the day are still
> mandatory.
>
> Test strips for the finger pricks cost anywhere from 60 cents to a dollar
> each. And it costs $10 every three days when the boys move the pump
> injection sites. Each of them can change the injection site on his own.
>
> Laura Markey's 9-year-old daughter, Alyson, has the disease. Her insulin
> pump cost $6,000. Insurance pays for only part of it, Markey said.
>
> "The scary part of it is when she becomes an adult, she's going to become
> uninsurable," the Prescott mom added.
>
> But somehow the family will work through that, she says. After all, Alyson
> almost died before her parents learned she has the disease. The doctors
> thought she had the flu. Then she became delirious and could not walk.
> Eventually a medical helicopter flew her to a Phoenix hospital, where
> doctors made the correct diagnosis.
>
> "She was in a coma for two days. It was horrible," Markey said.
>
> Equally horrible were the four shots and six needle pricks Markey and her
> husband had to learn to give Alyson each day.
>
> "She'd be angry with us and cry. We hated it, but we knew if we wanted her
> to live, we had to do it," Markey said.
>
> Simple things like eating a meal or even just a snack are problematic for
> people with Type 1 diabetes.
>
> "You have to monitor everything they eat," Dalton said. At one point, her
> four boys had to eat seven times a day to manage their blood sugar and
> insulin levels.
>
> Getting teenagers to stay on top of things, she says, is hard: "They think
> they're invincible."
>
> If they do not correctly match the amount of insulin in their injections 
> to
> the amount of carbohydrates they are eating, they could end up in a coma.
>
> Why did four of her five children get Type 1 diabetes?
>
> Dalton says she does not know. Neither does her family doctor. He once 
> told
> her, "When they ask you what causes the disease, tell them the doctors 
> have
> no idea," she said.
>
> Which is why today's walk is so important, she continued. Raising money 
> for
> research to find a cure for diabetes - or at least to find more answers - 
> is
> critical.
>
> People do not realize how insidious this disease is, Allbright said. For
> seven long years Cole's mom got up between 3 a.m. and 4 a.m. to check her
> son's blood sugar level.
>
> "I've found severe highs and severe lows," she says.
>
> She never misses a night.
>
> The hardest thing, she and the other mothers say, is that they can never
> relax, never leave their children with anyone, except perhaps briefly with 
> a
> grandparent.
>
> "I feel so bad for the parents who don't have a support network," 
> Allbright
> said. "Educate yourself and reach out.
>
> It's going to get easier, even though it seems like it's the end of the
> world."
>
> -- 
> Rachel
>
> Please Support Cole & me on our walk to cure type 1 diabetes!
>
 >
http://walk.jdrf.org/index.cfm?fuseaction=extranet.personalpage&confirmid=86858855
>
> http://www.jdrf.org/arizona
> .
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