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[IPu] Fw: [IPp] Toes and woes.



Hi All,
If you belong to the Parents of Pumpers (POP) List
you will have read this ...
But for others the two emails that follow are interesting reading ..
Janette

From: "Karen Persov" <email @ redacted>
To: <email @ redacted>
Sent: Tuesday, June 06, 2006 11:58 AM
Subject: [IPp] Toes and woes.


> We have tested BGs using Sarah's toes (at night) for more than 2 years,
> since we first started pumping. Sarah still needs at least two-hourly 
> blood
> tests through the night and we do this without waking her. We only use a
> flash light so the room stays dark and only shine the light on her feet. 
> The
> key is to grab the foot firmly (or it tickles and will wake her) in your
> hand, using your thumb and index finger to hold a toe. With practice you 
> can
> do this in one movement. A quick prick shouldn't wake her. Warm toes are
> essential, so choose one under the cover.
>
> This gives her fingers a chance to heal at night and we put tea-tree oil 
> on
> them before she goes to bed. The toes are fine to use in children unless
> they have been diagnosed with circulation/nerve problems. Such problems
> usually arise after a long period from diagnosis where A1c % has been 
> poorly
> controlled for many years.
>
> That's why we are pumping.. to prevent such complications in our kids and
> often this can only be safely achieved by regular testing throughout the
> night.
>
> Children need to grow and growth hormone is mainly released at night, so
> overnight basals will always change and need to be tested. During growth
> spurts, having sufficient insulin to cope with the insulin resistance of
> growth hormone is essential to maximise growth and keep down A1c.
>
> Have you thought of sending Carly to a diabetic camp this summer so she 
> can
> spend some time with other kids her age? We are flying to Texas (from
> London) again this year so Sarah can attend camp Sweeney. Sarah found the
> experience really positive and we got our first break from diabetes ( and
> full night's sleep together) in 8 years.
>
> Karen Persov
> mum to Sarah aged 9 (diabetic since May 1998, pumping(Cozmo) since March
> 2004)
>
> Carly's mom wrote...
>
> " My daughter Carly, who is 10, was diagnosed July 27, 2005, and has been
>> using the Animas pump for about 3 weeks.  This morning she hit the wall.
>> We have been testing at midnight, 3 am and 6 am.  She was exhausted and
>> didn't want to get up for school.  As much as I try and test without her
>> waking up, she does.  How long does night time testing last?  I'm sure
>> it is individual and may be indefinite, but it is becoming a struggle.
>> Her numbers for the most part have been wonderful.    This morning
>> she hated the pump, hated the testing, hated diabetes, thinks they'll
>> never find a cure, we're wasting our time etc.  I know she was tired
>> but, I'm really trying to convince her that we need to do our best until
>> a cure is found and to never ever give up hope."
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