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Fw: [IPu] Fw: [IPn] Insulin Pump Satisfaction Survey



----- Original Message ----- 
From: "Alan Reed" <email @ redacted>
To: <email @ redacted>
Sent: Sunday, December 15, 2002 9:54 AM
Subject: [IPu] Fw: [IPn] Insulin Pump Satisfaction Survey


> If you have not yet contacted your MP as suggested in the latest issue of
> the Conquest include this item as well.
> Alan Reed
> ----- Original Message -----
> From: "Michael" <email @ redacted>
> To: <email @ redacted>
> Sent: Sunday, December 15, 2002 5:53 AM
> Subject: [IPn] Insulin Pump Satisfaction Survey
> 
> 
> > I am forwarding this to the general membership since so many of you
> > participated in the study. I expect it will be of interest to all of
> > you. Ms Hodgson's comments are self explanatory. An excellent piece
> > of work!
> >
> > Since this is a published paper, it may be of help to some of you in
> > the UK and elsewhere that have difficulty convincing the "powers that
> > be" that a pump really makes that big a difference.
> >
> > email @ redacted
> >
> > ##################
> > Hello everyone!
> >
> > Since it has been awhile, I will re-introduce myself; my name is
> > Launa Hodgson, a graduate student from CSU Chico that posted the
> > survey that looked at the Quality of Life for people with Type 1
> > diabetes using insulin pump therapy during the summer of 2001. I
> > finally have the results of the survey that you so graciously filled
> > out. There was an amazing response, with nearly 600 people taking
> > part in the survey! With such an incredible response, the data
> > analysis took much longer than expected. You may be excited to know
> > that I presented this data at the American Diabetes Association
> > National meeting in San Francisco in June 2002. The abstract was
> > published in the Diabetes journal and can be found under: Hodgson,
> > LM., Hutchinson, GE., Loudermilk, L., Azevedo, JL. Jr.: Insulin pump
> > therapy improves the quality of life in Type 1 diabetic patients.
> > Diabetes 51 (Suppl. 2): S1816, 2002. The following is the printed
> > abstract; Insulin Pump Therapy Improves the Quality of Life in Type 1
> > Diabetic Patients To evaluate the quality of life in type 1 diabetic
> > patients using insulin pump therapy (IPT) the DCCT quality of life
> > (QOL) questionnaire was utilized in a web-based survey. Patients were
> > asked to evaluate selected aspects (satisfaction, impact, and worry)
> > of their lives by comparing previous injection therapy to current
> > IPT. Likert scale responses were employed for the various sections of
> > the QOL questionnaire. The responses employed were: "almost always",
> > "to a considerable degree", "occasionally", and "seldom". Of the 561
> > respondents 69% were female while 31% were male. The majority of
> > respondents (92%) were from the U.S., while the remainder were from
> > Canada, the U.K., and elsewhere. Of the 561 respondents, 307 had
> > diabetes for over 20 years; however, most respondents had been
> > utilizing IPT from < 1 to 5 years. Hemoglobin A1c decreased in 77% of
> > the respondents regardless of duration of IPT. Patient satisfaction
> > with diabetes management and care was significantly   (p < 0.01)
> > improved since initiating IPT. Respondents were either almost always
> > or considerably satisfied (n=512, p < 0.01) with their current
> > diabetes treatment since starting IPT. Additionally, personal
> > satisfaction was significantly improved since beginning IPT. Diet
> > flexibility was significantly affected with 81% (n=454) of
> > respondents almost always satisfied. Negative impact of diabetes on
> > the lives of patients was significantly reduced since starting IPT.
> > Respondents were seldom concerned about obtaining a job (n=358, p <
> > 0.01); however, there were no significant differences between
> > responses about being denied insurance. Hypoglycemic episodes were
> > either occasionally or seldomly experienced (n=459, 82%) since
> > starting IPT which represents a significant risk reduction.
> > Respondents were either seldomly or occasionally (n=486, 87%)
> > concerned of becoming unconscious since starting IPT. In conclusion,
> > the data support the hypothesis that insulin pump therapy improves
> > the quality of life in type 1 diabetics. Short-term enhanced QOL
> > could be due to the effectiveness of IPT, while long-term enhanced
> > QOL may result from decreased HbA1c which may lead to a reduced risk
> > of diabetic complications.
> >
> > Other Data
> > -430 respondents had a decrease in HbA1c values
> > -59% of respondents preferred the long length of tubing
> > -60% of respondents changed their infusion set every 3 days
> > -91% of respondents agreed that their self care needs had improved
> > -309 respondents seldom feel pain with the treatment of diabetes -307
> > respondents had been diagnosed with diabetes for over 20 years -305
> > respondents had been using the pump for 1 - 5 years
> >
> > None of this would have been possible without your involvement. Thank
> > you so much for taking the time to answer the survey. There was an
> > extremely large amount of data, so if you have any questions, or were
> > interested in any certain parts of the survey, please let me know. You
> > can reach me at email @ redacted We are currently working on a
> > manuscript to submit for publication in a journal, but that won't be
> > for quite awhile!
> >
> > Thank you very much for your time, Launa Hodgson
> > For mail list removal contact
> > HELP@insulin-pumpers.org
> > website http://www.insulin-pumpers.org
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