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Re: [IP] Lily
On Sun, 28 Sep 1997 email @ redacted wrote:
> This is a test message to the new mailing list. I read the article about
> Lily on the web page. I'm curious. All the manipulating with her basals,
> was that suggested by a doctor or cde, or has she just experimented on her
> own to come up with what works best for her. It sounds like she is doing a
> great job.
No, that is partly Dad. Adolescents have a lot of trouble with
variations in bg's partly due in part to rapid hormonal changes and
partly do to enormous appetites (and mis-calculation). Lily has been
carefully profiled and she is under real good control now. About the
last 6 months, she has taken over almost complete control of all insulin
management, calculation, etc.. I'm really proud of her. Evening
fluctuations are still a problem if she has not fasted for 5 - 6 hours
before retiring for bed. Usually we are up at 3:00am for a quick check
and about half the time she is below 70-80 or above 150. Otherwise
everything is ducky! If she is able to eat early, this is never a problem.
The trick appears to be a good understanding of basal rate requirements
for each day and each 'different' sleep pattern.
There is a message from Ted 'ZAXDADDY' inquiring about that subject, I
guess I'll put my two cents worth in here.
Lily experienced the sharp rise after getting up in the morning
ONLY on days she sleeps in. We found that if she rises later than about
9:00 am (she usually gets up at 6:30) then she needs a morning bolus in
the neighborhood of 1.5 to 2 units. After experimenting with this for
several months and getting it right, we actually asked the doc about it.
That is Dr. Prendergast from the chat group, he is Lily's doc. He said
that what we were seeing is similar to dawn effect and has to do with
sleep rythm etc... ZAXDADDY needs to 'carefully' check his fasting basal
rate during the times he has the variations in ratio.
The ratio change is most probably not real. The ratios should be constant
within about 10-15% or less. The underlying basal rate requirements change
A WHOLE BUNCH depending on physical activity, sleep pattern, health (or
Do a rigiorous basal rate study Ted, there will be detailed instructions
on how to do this on the web site in a couple of weeks. (they are in the
back issues of the digests, but I don't know which volume).