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Re: [IP] Propulsid Access Woes



Dianne, have you tried Ranitidine?  Granted it's not as good as Propulsid but I
figure there must be a good reason it was taken off the market. My Dr. also gave
me Reglan.  I had some bad side effects from that also. You might think it worth
a try.


Dianne De Mink wrote:

> Greetings-
> I have been going round and round trying to get into Janssen's Limited
> Access Program for Propulsid (used to treat my gastro-paresis).  I've 'gone
> through' two docs who after investigating the program (not my excellent
> cardiac health) decided it was too much of a hassle to get into it.  I had a
> physical last month which was pretty thorough - EKG and lots of blood work
> -including lipids -although Janssen says that not only will I have to do it
> all over again if I want to be in their program but that I'll have to have
> an endoscopy as well AND I'll have to pay for it out of pocket.  (It comes
> to several thousand dollars according to my internist's nurse.)
>
> I can't take Reglan - too many serious side effects.  Taking antibiotics
> (Erythromyacin) 4 x daily for life- sounds dreadful.  Viagra which has shown
> some promise - would run about $80.00 a day.  Anybody heard of anything
> else?  Sometimes I think that my obstacles in trying to access Propulsid is
> the cosmos' way of telling me to lay off.
> I'm out of medicine and nervous about the future of my well being.
>
> Dianne
> (Please email me c/o email @ redacted as I get the digest and
> sometimes miss posts.  Thanks and God bless.)
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