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Re: [IP] reply Hypo and hyper signs
- Subject: Re: [IP] reply Hypo and hyper signs
- From: email @ redacted (Emily Miggins)
- Date: Fri, 9 Oct 1998 12:30:57 -0700 (PDT)
Wow! this conversation is blowing me away. I am going to sound pathetic
after you read this.
My first low bg was in 1981, I was a young 12 year old swimmer. I threw a
paramedic down the stairs. I was then admitted to the ER where it took
them quite a long time to resurface me to reality. I was admitted with a
bg of 35 I think.
The second time was on a ADA sponsored rafting trip with 5 other diabetic
athletes, I was 14. I checked in walking and talking with a bg of 14
The third time was years later, and was the start of serious lowland
issues. I was 23 and protesting to keep abortion clinics open in Cleveland
Ohio. I was so enraged and had an argument with my boyfriend. Two weeks
earlier I had felt like I was dreaming and calling for help and woke up
drenched in sweat. I think my liver saved me that time by shooting
After a day of absolute outrage, I remember being in a dream like state. I
awoke naked with 6 paramedics hanging over me. It was the first time I had
gone unconscious in my sleep due to hypo's.
1994 at age 25 I was stressed out, depressed. I had just switched to
Lente. I had normal bg's at 10am and took a nap. I awoke two hours later
to my best friend and boyfriend attempting to put OJ down my throat with a
straw. I could hear them but couldn't see them. I said "9----1---" they
Later that same month I woke up in different PJ's than I went to bed with.
I had no recollection of a severe hypo. at 27mgdl. and my boyfriend helping
me change my sweaty pj's.
In 1996 I woke up one night confused and frightened. I couldn't use my
legs. I put my arms through a window when I tried to walk. My BG was very
low, but I got to the OJ, glass/blood and all. I NEVER KNEW HOW LOW I WAS.
Late 1996 I was put on Humalog.
I was doing great for a period. My HG went from about 13 to 8. I was
happy then it happened on memorial day 1997. I was at a conference where I
was going to speak. I went to bed with normal bg. I remember being in a
fit like state. Writhing around in my hotel room. The wind was blowing
and I was cold. I literally crawled (because I could not WALK) to the
reception desk at 4am in the morning and grabbed a handful of peppermint
patties and crawled back upstairs in this B&B. I sat in a bathtub of warm
water. It took me a long time to regain the use of my legs.
I reported it to my doctor, they were concerned.
It wasn't until November 1997 that I was scared out of my mind. I had a
stressful day at a environmental gathering at the Sierra Club. I went home
ate a full diner. My sugar was normal. I had a argument with my
boyfriend. I went out for drinks with friends. My friend Chad whose
brother is diabetic too, noticed I was stuttering. I drank no alcohol. I
turned to him and said 'Chad I am not well'. I tested my blood I was
62mgdl. I had a tingle in my spine, no sweating. I drank a pint of OJ. I
seemed to rally. My mouth was numb though. my neck was siezing me. We
walked with friends to the car a few blocks away. From there it is a
I remember trying to put words together and couldn't. Chad got me a bottle
of OJ and slammed it down my neck. I rallied one last time. I was walking
and talking to my front door. I hit pavement face down. EMS came I had no
blood sugar reading. What is odd is the short window that humalog is
supposed to have. My endo now thinks I had my first diabetic seizure that
That is when I told Kaiser I was going to sue their ass if they didn't get
me on a pump. It was a long slow process.
I get the pump and get my life back.
But then I realize Kaiser doesn't know much about pumps. I was on my own.
I switched health plans at age 29 (now) but it was hard. I had to
establish a new relationship with a new GP to get a referral to UCSF. In
the meantime I had run out of pump supplies.
I went back to shots, I couldn't use the Kaiser pharmacy in the in between
time any longer. I went back to Ultra Lente and multiple injections of
humalog. Walking in Central Park this last July I couldn't seem to stop
tripping on my new shoes. My right leg was rubbery. I turned to Dan, my
boyfriend and said "Dan I am about to loose it". I began to collapse, my
legs fell from underneath me. But I was still talking and making sense, no
sweatiness. My bg had been 119 two hours earlier. I ate a carrot muffin
(70 gram CHO), I have a 10/1 ratio. I shot 7units of humalog. I bolused
with a needle per se. I sat with Dan on a park bench. I was 20something
again. I had the same seizure stuff, my jaw locked, I lost my legs.
Two weeks later after my first appointment with my GP who had never seen a
pump before, and couldn't write my prescriptions but would refer me to
UCSF. A day later I had a long day of moving to my new home. I went to
bed with a bg of 67. I ate a glucose tablet, exhausted I went to sleep
stupidly. I once again had a locking in my spine, jaw and a tremendous
headache. I woke up to 6 paramedics over me, and a hic-cath in my neck.
They said my bg was 14.
I am sorry this is so long. However, now that I am seeing a qualified
doctor at UCSF I am angry and very bitter. The other day I said "Diabetes
is a human rights issue". I meant it. The shabby care that I HAVE BEEN
GIVEN BY KAISER all of these years has effectively damaged me. Way damaged
me. And I am coming back with one hell of a vengeance if not vendetta.
The insidiously negative support I got from doctors and nurses over the
years kept me away from the pump. My kidneys are damaged as well as my
hands and sight. I believe HMO's have a responsibility to let patients of
all creeds, race and socio-economic-geo- political backgrounds know what
treatments are available to them.
I am interested in running a bill in Congress. The bill would be about
human (patient) rights and diabetes.
PS: my hypo signs are;
empty feeling in stomach and chest
loss of limb function
are lower arm swelling
Insulin-Pumpers website http://www.bizsystems.com/Diabetes/