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Re: [IP] Them's FIGHTIN' words!!!!
- Subject: Re: [IP] Them's FIGHTIN' words!!!!
- From: "Frank W. Tegethoff, jr." <email @ redacted>
- Date: Sat, 03 Oct 98 18:19:46 PDT
Quick does make a good argument. There are many ways of dealing with insu=
lin delivery. As for the puchase question, I am going to assume that it =
was a poorly phrased question to help determine the level of commitment =
I have a problem with his closing sentence. Just how long is "long cons=
ideration". I was in the DCCT. We tried 'tweaking' my regime for the =
entire duration of the trial, with limited improvement. I was part of the=
standard group, so tat the time the pump was not an option. My endo afte=
r the trial tried 'tweaking' it again. I went on a bumpy ride for a lot =
longer than I thought was neccesary.
I think that if you are committed to getting good control, you should hav=
e enough medical info within 60 to 90 days to know if MDI is going to wor=
k. If a 12 y o can gather all of that, I think they would be a great can=
didate for the pump. This young person already knows that their current=
regime isn't working.
> The folowing excerpt was sent to me by a fellow Pump Proponent (mom of =
> successful pumper) who was outraged by the response given to an inquiry=
> pump therapy by a 12 yr old.
> Anyone else care to tackle this? By the way, the doctor who responded =
> sure to scroll all the way down) had responded in comparable fashion =
> months ago.
> 2 other "pump moms" and I all wrote to express our dismay at the
> MISinformation being disseminated regarding kids on pumps. Needless to =
> did NOT take too kindly to our criticism!!!.....Now that this IP group =
> nearing 600 members, including some "pint-sized pumpers" who are consid=
> younger than 12, I think this Dr. needs to "broaden his horizons".
> Thanks, Renee
> (this is what was sent to me.....)
> The following was posted at the Children With Diabetes Ask the Team sec=
> the website. I personally am very disheartened that these two physicia=
> given little hope to a child who appears to make a conscious effort to =
> improve his life. If you have a comment about it, I urge you to write =
> Doctors themselves. You can write to the doctors by going to the URL =
> and clicking on each physician's initials.
> How Dr. Quick has the nerve to ask this child "who is going to pay for =
> pump?", is beyond me. I hope the 12 year old wrote back and said he'd =
> starting a lemonade stand on his front lawn Saturday mornings between =
6 and 8
> a.m. and would save up....GRRRRRRRRRRRRRRRRr
> >From Stone Mountain, Georgia, USA:
> I am 12 years old, and I am interested in an insulin pump because my =
> blood glucoses have been 200-300+ at breakfast in the morning, and
> 150-250 for dinner. (My range is 80-180.) My parents don't know what =
> do because if we change anything, my glucose is about 30-40 in the
> middle of the night, and for dinner, if I reduce my lunch, I have to =
> snacks about every two hours. What should we do?
> It's not an easy task to answer your question specifically by e-mail. =
> First of all, it would be important to know your daily insulin doses =
> see if you're already on a proper intensified regimen (for example,
> Regular before meals, eventually added with NPH at breakfast and/or
> lunch, plus Regular before supper and NPH at bedtime as well as the
> correct timing of your insulin injection) that could assure you a bette=
> fasting blood sugar avoiding lows during the first half of the night. =
> Only if such a regimen, properly applied, doesn't work, then I'd advise
> the pump to an adolescent: in fact it takes a lot of motivation and of =
> education, and quite a lot of coaching from your diabetes team, to lear=
> the new and complex program associated with an insulin pump.
> I think that if you and your family have already achieved the most
> important factors (education and motivation), you should be able to
> control your daily blood sugar shifts on subcutaneous insulin therapy =
> without the need of a pump. And if not, you should now concentrate on =
> them before any new device such as a pump is considered.
> In any case, you'd better discuss how to find the best way to treat you=
> diabetes with your diabetes team.
> Additional comments from Dr. Quick:
> Dr. Songini doesn't sound too excited about using a pump in your
> situation. Neither do I. Starting an insulin pump is a very complicated
> decision for anyone to make, let alone a 12 year old, and the factors =
> that I consider important before anyone makes a final decision include =
> much more than just correcting a single problem with blood sugar
> control. Other factors include the level of your desire to "take
> control" of your diabetes, your need for more flexibility in insulin =
> delivery to match a variable lifestyle, your willingness to live with =
> device 24 hours a day, your willingness to check at least 4 blood sugar=
> daily, and much, much more: for instance, do you have a doctor and
> diabetes team who are familiar with using pumps in young adolescents? =
> Who's going to pay for the pump? What do your parents think of pumps? =
> Are you an independent-minded individual who's willing to experiment? =
> you like mechanical gadgets?
> Basically, there are many possible ways to give insulin by shots to dea=
> with your present problem, and until they are all tried, it's difficult
> to visualize that starting an insulin pump would be any easier. A pump =
> is appropriate part of diabetes therapy for some kids your age, but onl=
> after long consideration of all the factors involved.
> Original posting 30 Sep 1998
> Posted to Medications: Insulin Pumps
> Insulin-Pumpers website http://www.bizsystems.com/Diabetes/
Insulin-Pumpers website http://www.bizsystems.com/Diabetes/