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Re: [IP] Tegretol...

Hello Claudia,
You are so right about being your own doctor.  I also have a lot of pain and
problems from neuropathy.  My diabetes was also out of control when I
finally found a doctor that would start me on insulin because the pills were
not helping.  I was first diagnosed in 1992 and used different oral agents
but I probably never was in good control and then in 1997 i started on one
shot of insulin and I had problems still with lows and highs.  Finally,  I
got so sick and doubled over in pain and the doc started MDI , and my third
neuro put me on neurontin and 2 different anti-depressants along with a
narcotic pain med.  I can at least take care of myself again but still have
a lot of problems that have disabled me.  If I only knew what I was doing to
my body and had been more persistant  about using insulin, maybe I wouldnt
be in this shape.  I have been pumping for about one & half years and I love
it.  When I first ask my doc about getting the pump, he said no.  I was
persistant and he finally said yes.  I dont think he knows much about the
pump and I feel like I am taking care of myself.
This sight is very helpfull and I have learned a lot just reading the
different emails.  Thanks for the info on the tegretol and I am going to ask
about it wwhen I see my neuro in a few weeks.
-----Original Message-----
From: Claudia Beteille <email @ redacted>
To: email @ redacted <email @ redacted>
Date: Tuesday, November 23, 1999 10:42 AM
Subject: [IP] Tegretol...

>Hi Guys,
>    Well, I was reading a lot of the threads about different types of
>Neuropathy. Well, I am 26 years old and I started having Neuropathy in BOTH
>legs when I was 19. I was a terribly bad controlled Diabetic. Awful its
>terrible to even think how bad.
>    Well, anyway, I was in SEVERE pain and lost a lot of weight. I couldn't
>eat, sleep, work or go to college classes. I was miserable. I went to
>doctors and they seemed so stupid on the matter. They put me on very strong
>pain killers, I mean STRONG. Which didn't help me because its a nerve
>problem, UGH! Well, anyhow I was loopy 24/7 and I still had pain. The two
>didn't work well at all. I stopped school and working to stay in bed and
>all day. What a life at 19!!
>    Well, finally I found a Neurologist that went to school. WOW! He put me
>on Tegretol. It is used for epileptics and IMMEDIATELY my pain went away.
>THAT DAY! I had been suffering from Chronic pain 24/7 for 4 months
>    Well, now I am 26 years old and I have Charcot joints, which is usually
>a next step from Neuropathy. It is a bone degenerative disease. PAINFUL
>again, but I can only blame myself. they figure it would have happened
>from now, but I helped it along by having terrible control for so many
>years. Well, anyhow, I can still walk, well I DO, and I have deformed,
>rather still deforming feet. I had to go to 30 doctors to get help!! 25 of
>them shrugged their darn shoulders at me and said they don't know what it
>and they cant help. I did my OWN research and discovered what it was. It is
>Charcot Arthropathy. The doctors diagnosed me wrong left and right. I have
>many other problems with my feet and knees thanks to these wonderful dumb
>    Well, anyway, I wanted to get the message out there that you NEED to be
>your own doctor and diagnose yourself, before entering the doctors office.
>Usually they know their stuff, but be up on everything so you can ask TONS
>of questions. We have to take care of ourselves and NOT let the doctors do
>it. I have learned the hard way. NOW, if I feel something is wrong I go
>or look it up until I find what I think it might be, then go to the doctors
>with an IDEA.
>for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
>send a DONATION http://www.Insulin-Pumpers.org/donate.shtml

for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
send a DONATION http://www.Insulin-Pumpers.org/donate.shtml