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RE: [IP] re: frustrations!

Take heart, our dog came down with diabetes and vets get less than 15
minutes classroom time on the subject. I couldn't believe what they don't
know. I am now running my own sugars plus our dogs. I was lucky enough to
have a vet that is capable of telling the truth and using "I don't know".

By the time you've lived with this disease for so many years you about know
your body backwards and forwards and they seem to forget that each of us is
different. Try settling down before you have a coronary here, but I should
talk, you should have heard me about the vets! Basically, you have a lot
more experience with your body than any of your caregivers so you probably
get terribly frustrated listening to them talk about something that has
nothing to do with you, right? By the time you reached the end with the
nutritionist I think I would have told her off as you are correct, she has
no business getting into other issues besides nutrition.

I think I went through five doctors before I found one that understood what
MY particular problems were and that I was the one to have to deal with
them, not him. We work together, and that is a big plus. You don't need
people telling you what to do, especially if it doesn't apply. Go out in the
back yard and scream.....except......laryngitis could pose a problem....


-----Original Message-----
From: email @ redacted
[mailto:email @ redacted]On Behalf Of Serena Shapiro
Sent: Thursday, May 08, 2003 12:38 PM
To: email @ redacted
Subject: [IP] re: frustrations!

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I have to vent or I'll explode!  I have just started working with an
endocrinologist at a local hospital who is pump savy and will probably be
fine.  This is only at the request of my internist who is both diabetes and
pump savy (having taught herself everything about pumps once I became her
patient) and whom I adore.  So Dr. S. upon my first (and so far only visit)
explains that I have to see a nurse educater and nutritionist I gather at
least once in order to work with her. I agree and today saw both, one
following the other.  Now forgive me but I have a real problem with any
care provider who is significantly overweight who is going to educate me
how to keep myself health living with diabetes.  The nurse educater presents
as such.  She then explains how she is going to ask me some basic questions
about diabetes.  I have no patience with such "basics" at this point in my
life after having lived with this disease, in a very pro-active manner for
years and so we start off with me declining the basic questions.  She probes
about with lack of knowledge about recent blood tests drawn, hormonal,
prolactin levels ect. as she doesn't know what normal values are....I try
cope with her and then get presented to the nutritionist who after a bit of
chat with me says, "no one uses only one basal rate" (I have .6 around the
clock) and starts explaining why I need to have more rates.  I just couldn't
believe it....my last A1C's have been 6.5, 6.1 and 6.9 ,my glucose values
(which I had to present) are great and very steady(I check constantly,
including all night long)  (and as my partner put it...what is a
doing talking about your pump instead of nutrition.)  She then goes on to
explain how on the pump you don't get hypoglycemia!  Needless to say I
challenged her on all things including...why are you trying to change things
when nothing is wrong?  I can't tell you all how frustrated I was...yet
another medical person in my life who thinks they need to tell me ...never
mind that I never asked and don't have present difficulties, how to run my
life as a diabetic!   You can tell I'm still frustrated but I know you would
all understand and just wanted to "speak with everyone on this list!"
for being there!  serena dx'd 76, pumping since '89
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