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[IP] Modified Edmonton Protocol Clinicl Trial

Well, 1st I applied via the immune tolerence network and was turned down. A 
member of our pump group got on this clinical trial, but not the immune 
tolerence one, and she gave me the phone number to call at Washington 
University at Barnes Hospital in St. Louis, MO. So I called and they sent me 
an application, then called and I had to have a bunch of tests done, which I 
passed, then I had to go to Barnes for 2 1/2 days and stay for more tests. 
1st they said I did not pass the kidney test, but we fought it, so I went 
back and had a 5 hr. radioactive iodine test, which I had to pay for myself, 
which I passed and showed that my kidneys were fine, so they called and said 
I could be in the trial and they would add my name to the transplant list. 
But, kidney donations are very few and far between.

My friend had hers (they are trying to use only 1 pancreas) and rejected it. 
They have done 1 other one on a very small person, who is on 1/2 her 
previous amt. of insulin and may need another transplant. So, I should be 
next after them, I think. I hope!

Sue (dalgal)


----Original Message Follows----
From: "Melany Noltenius" <email @ redacted>
Subject: Re: :[IP] Re: long-termers who have avoided complications  REMOVAL
Date: Mon, 27 May 2002 14:16:00 -0400

How did you get into the Modified Edmonton Protocol ?

 > I'm in a clinical trial for the Modified Edmonton Protocol for an Islet
 > transplant and I just wish the would get more pancrease donations so the
 > would call me soon for that transplant!

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