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[IP] Fw: JDRF Washington Report, Vol. 5, No. 12 - URGENT ACTION NEEDED!



----- Original Message -----
From: <email @ redacted>
To: <email @ redacted>
Sent: Wednesday, May 22, 2002 11:39 AM
Subject: JDRF Washington Report, Vol. 5, No. 12 - URGENT ACTION NEEDED!


JDRF Washington Report
Vol. 5, No. 12
May 22, 2002

WE NEED YOUR HELP!  CALL YOUR MEMBERS OF CONGRESS AND ASK THEM TO SIGN THE
LETTER IN SUPPORT OF INCREASED JUVENILE DIABETES RESEARCH FUNDING!

Senators Susan Collins (R-ME) and John Breaux (D-LA) and Representatives
Diana DeGette (D-CO) and George Nethercutt (R-WA) recently co-sponsored
letters in support of increased funding for juvenile diabetes research and
Native American diabetes treatment programs.  The Senate letter will be sent
to the Senate Majority Leader, Tom Daschle (D-SD), and Minority Leader,
Trent Lott (R-MS).  The House letter will be sent to President Bush.

These House and Senate letters are extremely important in generating support
for increases to juvenile diabetes research funding!  It is crucial that as
many Members of Congress as possible sign the letter!

We need your help!  At the bottom of this email, we have attached the House
and Senate letters with lists of the House Members and Senators who have
already signed on. If your Member of Congress is on this list, please call
him or her to express your thanks!  If your Member of Congress is not on the
list, please follow these fast and easy steps to take action:

To Determine your U.S. House Member and U.S. Senators:

-   Go to http://www.jdrf.org/
-   Click "Legislative Action"
-   Click "Determine Your Members of Congress"
-   Enter your full home address and click "Submit"
-   Look up your U.S. House Member By Zipcode
-   You'll be provided with a link to your House Member and his or her
contact information
-   Go back - Then look up your U.S. Senators By Zipcode
-   You'll be provided with a link to your Senators and their contact
information

For your House Member:

1.  Call your House Member's office and ask to speak to the Health Aide
2.  Tell the Health Aide that you are calling to urge your House Member to
sign the letter sponsored by Representatives DeGette and Nethercutt in
support of increased juvenile diabetes research funding.
3.  Tell the Aide your personal story about living with juvenile diabetes
and that increased research funding is crucial to find a cure for the
disease.
4.  Tell the Aide to call Dawn Jackson in Representative Diana DeGette's
office at 5-4431 or Kendall Van Pool in Representative George Nethercutt's
office at 5-2006 to sign the letter.

For your Senator:

1.  Call your Senator's office and ask to speak to the Health Aide.
2.  Tell the Health Aide that you are calling to urge your Senator to sign
the letter sponsored by Senators Collins and Breaux in support of increased
juvenile diabetes research funding.
3.  Tell the Aide your personal story about living with juvenile diabetes
and that increased research funding is crucial to find a cure for the
disease.
4.  Tell the Aide to call Priscilla Hanley in Senator Susan Collins' office
at 4-9223 or Sara Traigle in Senator Breaux's office at 4-4623 to sign the
letter.

PLEASE SEE THE HOUSE AND SENATE LETTERS (BELOW) WITH THE LISTS OF MEMBERS OF
CONGRESS WHO HAVE ALREADY SIGNED ON.  MAKE YOUR CALLS TODAY!!

House letter sponsored by Representatives DeGette and Nethercutt:

The President
The White House
Washington, D.C. 20500

Dear Mr. President:

We write to seek your support for increased funding for juvenile diabetes
research as well as treatment and prevention programs for Alaska Natives and
American Indians, who suffer in disproportionate numbers from diabetes.

As you know, diabetes costs the nation more than $100 billion annually, and
individuals with the disease account for one in four Medicare dollars.
Moreover, it has a dramatic impact on the lives of the families who are
affected.  In addition to the daily regimen of insulin injections and finger
pricks is the extremely difficult task of balancing blood sugar levels to
avoid low blood sugar attacks or long-term complications of the disease,
such as blindness, kidney failure, heart disease, stroke, and amputation.

Despite these grim statistics, there is real hope for curing and preventing
juvenile diabetes.  For example, over the past two years, researchers have
successfully transplanted insulin-producing islet cells into individuals
with juvenile diabetes and nearly 80 percent of the approximately 70
transplant recipients have remained insulin free.  Congressional support for
this research has been crucial, and additional funding and long-term
commitments are needed to further advance these expensive clinical trials as
well as to develop ways of producing larger numbers of insulin-producing
cells that can be transplanted without the need for immunosuppressive drugs.

Federal support has also been vital in dramatically expanding the diabetes
programs and services available to communities of American Indians and
Alaska Natives, who suffer disproportionately from the disease.  The
prevalence of diabetes among American Indians and Alaska Natives is 12.2%
overall, more than 1.5 times the rate of the general population of the
United States.  In some tribes, diabetes affects well over 25% of the adult
population.

Grant awards from the Indian Health Service (IHS) to tribes have been used
to develop and enhance diabetes programs that utilize traditional cultural
methods; to create, improve, and augment diabetes care provider teams at the
tribal level; and to establish and improve local diabetes clinics.  Most
importantly, these funds have afforded tribes the opportunity to directly
address diabetes prevention at the tribal community level.

Although federal support for programs designed to further this research and
also to help American Indians and Alaska Natives in preventing, treating,
and managing the disease has been critical, current funding levels are
inadequate.  For example, the 1999 congressionally mandated Diabetes
Research Working Group report recommended that $1.5 billion be invested in
diabetes research at the National Institutes of Health in FY2003.  However,
NIH estimates that it will only be able to support 56 percent of the
recommended funding level.

We urge you to work with us to approve legislation this year that will help
to both further the exciting research underway as well as increase support
for treatment and prevention programs for American Indians and Alaska
Natives who suffer from diabetes.  Your support is critical in moving us
closer to a cure for juvenile diabetes as well as in ensuring that American
Indians and Alaska Natives who are affected disproportionately from diabetes
receive the necessary treatment and preventive services they need.

    Sincerely,

The following House Members have already signed the letter sponsored by
Representatives DeGette and Nethercutt:

Diana L. DeGette - Co-sponsor
George R. Nethercutt, Jr. - Co-sponsor

Neil Abercrombie
Joe Baca
Spencer Bachus
John Baldacci
Tammy Baldwin
Tom Barrett
Doug Bereuter
Rod Blagojevich
Henry Bonilla
Sherrod Brown
Chris Cannon
Eric Cantor
Brad Carson
Donna Christian-Christensen
Howard Coble
Jerry Costello
William Coyne
Susan Davis
Lloyd Doggett
Mike Doyle
Jennifer Dunn
Ernie Fletcher
Harold Ford
Greg Ganske
Gene Green
Tony Hall
Melissa Hart
Alcee Hastings
J.D. Hayworth
Earl Hilliard
Joseph Hoeffel
Michael Honda
Darlene Hooley
Jay Inslee
Darrell Issa
William Jefferson
William Jenkins
Stephanie Tubbs Jones
Patrick Kennedy
Ron Kind
John LaFalce
Rick Larsen
John Larson
Barbara Lee
William O. Lipinski
Zoe Lofgren
Carolyn B. Maloney
Frank Mascara
Cynthia McKinney
Patsy Mink
Solomon P. Ortiz
Charles Pickering
Rob Portman
Nick Rahall
Silvestre Reyes
Bob Riley
Lynn Rivers
Ileana Ros-Lehtinen
Mike Ross
Janice Schakowsky
Ronnie Shows
Adam Smith
Vic Snyder
John Sweeney
Karen Thurman
Edolphus Towns
Jim Turner
Tom Udall
Heather Wilson
David Wu

Senate letter sponsored by Senators Breaux and Collins:

The Honorable Tom Daschle, Majority Leader
The Honorable Trent Lott, Minority Leader
United States Senate
Washington, DC 20510

Dear Senators Daschle and Lott,

We are writing to seek your support for increased funding for juvenile
diabetes research as well as treatment and prevention programs for Alaska
Natives and American Indians, who suffer in disproportionate numbers from
diabetes.

Diabetes is a devastating, life-long condition that affects people of every
age, race and nationality.  Sixteen million Americans have diabetes, which
costs the nation more than $105 billion a year in health-related
expenditures.  More than one out of every ten health care dollars and about
one out of four Medicare dollars are spent on people with diabetes.
Moreover, it has a dramatic impact on the lives of the families who are
affected.  In addition to the daily regimen of insulin injections and finger
pricks is the extremely difficult task of balancing blood sugar levels to
avoid low blood sugar attacks or long-term complications of the disease,
such as blindness, kidney failure, heart disease, stroke, and amputation.

Despite these grim statistics, there is real hope for curing and preventing
juvenile diabetes.  For example, over the past two years, researchers have
successfully transplanted insulin-producing islet cells into individuals
with juvenile diabetes and nearly 80 percent of the approximately 70
transplant recipients have remained insulin free.  Congressional support for
this research has been crucial, and additional funding and long-term
commitments are needed to further advance these expensive clinical trials as
well as to develop ways of producing larger numbers of insulin-producing
cells that can be transplanted without the need for immunosuppressive drugs.
In addition, recent research has demonstrated that it may be possible to
prevent the onset of juvenile diabetes in individuals who are likely to
develop the disease.  Researchers have also shown that it may be possible to
prevent complications of the disease by carefully regulating blood-sugar
levels.

Federal support has also been vital in dramatically expanding the diabetes
programs and services available to communities of American Indians and
Alaska Natives, who suffer disproportionately from the disease.  The
prevalence of diabetes among American Indians and Alaska Natives is 12.2%
overall, more than 1.5 times the rate of the general population of the
United States.  In some tribes, diabetes affects well over 25 percent of the
adult population.  Additionally, Native Americans are much more likely to
suffer from the debilitating and deadly complications of diabetes such as
blindness, kidney disease, and neuropathy - a condition that frequently
leads to lower-limb amputation.  Amputation rates among Native Americans are
three to four times higher than among the general population.

Grant awards from the Indian Health Service (IHS) to tribes have been used
to develop and enhance diabetes programs that utilize traditional cultural
methods; to create, improve, and augment diabetes care provider teams at the
tribal level; and to establish and improve local diabetes clinics.  Most
importantly, these funds have afforded tribes the opportunity to directly
address diabetes prevention at the tribal community level.

Although federal support for programs designed to further this research and
also to help American Indians and Alaska Natives in preventing, treating,
and managing the disease has been critical, current funding levels are
inadequate.  For example, the 1999 congressionally mandated Diabetes
Research Working Group report recommended that $1.5 billion be invested in
diabetes research at the National Institutes of Health in FY2003.  However,
NIH estimates that it will only be able to support 56 percent of the
recommended funding level.

We urge you to work with us to approve legislation this year that will help
to both further the exciting research underway as well as increase support
for treatment and prevention programs for American Indians and Alaska
Natives who suffer from diabetes.  Your support is critical in moving us
closer to a cure for juvenile diabetes as well as in ensuring that those who
are affected disproportionately from diabetes receive the necessary
treatment and preventive services they need.

    Sincerely,


The following individuals have already signed the Senate letter:

Susan Collins - Co-sponsor
John Breaux - Co-sponsor

Daniel Akaka
Barbara Boxer
Sam Brownback
Jim Bunning
Conrad Burns
Maria Cantwell
Thad Cochran
Kent Conrad
Larry Craig
Mike Crapo
Mark Dayton
Mike DeWine
Byron Dorgan
Mike Enzi
Chuck Hagel
Tim Hutchinson
James Inhofe
Tim Johnson
Edward Kennedy
John Kerry
Mary Landrieu
Blanche Lincoln
Zell Miller
Patty Murray
Pat Roberts
Gordon Smith
John Warner
Ron Wyden
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