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Re: [IP] pump at school mistaken for beeper

I usually like to snip messages, but all should read this again. I 
screams 504 plan 504 plan 504 plan 504 plan 504 plan 504 plan 

I can't overstate how important it is for ANY DIABETIC CHILD IN
PUBLIC SCHOOL to have a 504 plan. 

A 504 plan COMPLETELY removes discretionary calls like this from the 
hands of teachers and administrators at a school. It puts them in the 
LEGAL POSITION OF NEGLIGANCE if they have not read and do not adhere 
to the 504 plan for a student that has the covered disability. If you 
do not have a 504 plan for your child / student then you are really 
missing the opportunity provided by federal law to protect your child 
from these abuses. Yes, they will still happen because some people 
will not follow the rules, but at that point you can insist on severe 
reprimands and they will not be able to say "I didn't know" since 
they are required by law to know when there is a 504 plan in place.

email @ redacted

> Lois,
> Sara had a very similar experience. At the beginning of every school
> year I send a typed letter to every school administrator, teacher,
> secretary and nurses concerning Sara's health and the pump. It
> includes details they do not need to know, but I include these for
> those few teachers you will run into who wish to really know their
> students. The principal at her middle school stopped her in the
> hallway one day and told her that her phone was not allowed at
> school and to give it to him. Sara told him it was her insulin pump
> and not a phone. She even had to showed him her insertion site. This
> person had letters from both the nurse and me concerning the pump.
> These letters even included statements that it looks like a phone or
> beeper. He did not bother to read the letters. I then wondered how
> many other students are in his school with potentially life
> threatening health problems that he has not read the appropriate
> memos. Even this year as Sara became a high school student we had
> one teacher who was just too rigid in every manner to deal with. We
> finally pulled Sara from her class last week. At the first parent
> conference in the fall her first words to me were "I was going to
> call you earlier this year and ask you to get up each morning and
> feed Sara at home before she came to school. Then I was told she was
> on the swim team and had practice at 5:30AM and was eating after
> that. I then was going to ask you to tell her to eat what she could
> in the hallway between the end of practice and getting to my class.
> Then I was told she is Diabetic and has to eat. I will allow her to
> eat her breakfast because she is Diabetic, but she needs to do it
> within the first 5 minutes of class."  Our mouths dropped open and
> as parents we both thought, "This is a teacher?" The swim team is
> allowed by the school administration to eat during the first class
> since they swim until 7AM and class starts at 7:25AM. Sara was not
> breaking any rules by eating. She was not even doing her BG tests in
> class but at the pool before she got her breakfast. Second, I was
> getting up every morning at 4:45AM to go to practice with Sara
> because she was having so many problems this year with BG and the
> early morning practice. Her control was out the window. I had even
> written a letter to all the teachers explaining that her BG's were
> not going well and she could be having difficulty in classes while
> we worked this out. This teacher did not care one bit about Sara,
> only that she had food in her room. That was the high point for the
> year. We finally gave up, but had a talk with the principal after we
> pulled her from the class. We try very hard to educate individuals
> in contact with Sara with the hope they will appreciate the extra
> miles a Diabetic must go through to manage an average day let alone
> every time they add any activity or change of routine. Some people
> just refuse to see or learn. They must exist in a very small and
> stifling world. Instead of encouraging Sara and being able to feel a
> sense of accomplishment by helping a student reach goals, she just
> shut a student out. School can be tough for teen Diabetics. Thank
> God for the other students. We have found that Sara's peers are more
> accepting and encouraging of this illness and the lifestyle
> disruptions than the adults at the school. Maybe the kids of today
> are better people than the adults we have become. Pam, mom to Sara,
> 15 ---------------------------------------------------------- for
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email @ redacted
for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
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