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[IP] Re:) need some Names and addresses!
If you could get me the address, preferably the addresses to these
particular people, I would LOVE to write them a letter. I have nothing in
the world to do but let these so-called "educated people" know how us rural
Americans have mastered the knack of operating this so very complicated
piece of scientific apparatus and have managed to survive "stabbing
ourselves it the gut" every few days! I would love to let them know
personally that my BG's have NEVER been this good! I have NEVER in my 39
years with IDDM felt so fine! I have NEVER wanted to spread the word about
the marvelous little pump! It is the best thing that could EVER happen to a
"young" diabetic. Not only will it give them the freedom to live a better
life but will make them feel WONDERFUL at the same time! Send me some names
and addresses. Take names and remember No Survivors".
Buddy '-) email @ redacted
Buddy '-) email @ redacted
From: Michael <email @ redacted>
To: email @ redacted <email @ redacted>
Date: Thursday, March 12, 1998 10:20 AM
Subject: [IP] (Fwd) need some suggestions on what to do..
>My Name is Mary DeMello and our 8 yo son Chris has diabetes. We've
>been researching an insulin pump for quite some time now. I'm on the
>pumpers mailing list under a different web address(email @ redacted)
>and am currently changing my ISP. Your mailing list has really
>helped our family to make the decision that a pump was the right way
>to go for Chris.
>We first approached our endo about this six months ago, just for
>information and got a very negative response from her.She did
>say,however, at that visit that when we were ready, she would support
>our decision, but that she wanted us to give it more thought.(We use
>Joslin clinic in Boston, which is about 1 hour north of where we live).
>However, we did decide to wait until he started asking us about it,
>which he has been doing for the last couple of months now(actually
>nagging would be a better word!!)So, this past Monday, we had our
>regular endo visit and decided to tell her we were ready.
>She told us that she felt Chris was too young and that a pump was alot
>of work. She was very negative, to say the least. When my husband
>finally had had enough, he told her to just get things going. So she set
>up an appointment with the nutritionist to learn carb counting and with
>a psychologist. The psychologist appointment is supposed to scare us
>straight and make us change our minds about pumping.(There's a better
>chance of snow in July at this point).The endo also said that if we do
>decide after all these other appointments to go forward with a pump,
>then she'd have to refer us to an endo at Yale.(a 3 hour drive on a good
>traffic day for us)
>Another interesting, note...we attend a support group, mainly because
>there's a kids group at the same time which Chris likes to do. The
>subject of pumps was raised by another parent and they were told by the
>psychologist that insulin pumps are not a cure ...they're alot of work
>and hard to operate...This same parent also asked how they work and was
>told that its a device(hand gesturing that it was alot larger than it
>actually is) attached to tubing that attached to a needle(again hand
>gestures indicating the needle to be HUGE)that you insert in your
>abdomen and it stays there for 2-3 days until YOU have to change
>it.(body language indicating" you're not medical personnell, so how
>could you possibly handle chaging infusion sets??") OH yeah "be grateful
>you live in an era where you have glucose meters and use MDI's"(yes, in
>case your wondering at this point, this is THE Joslin Clinic we were
>Sorry I got so lengthy there, but I needed to let you know the whole
>story before asking your help.
>Do any children that you know of pump in New England(especially the
>Massachusetts?Rhode Island area)? If so, Who is their doctor???
>Also, I'd like to let the endos at Joslin know that yes, indeed,
>children are using pumps successfully. I was wondering if it would be
>possible to invite anyone from your mailing list who would want to write
>a letter to Joslin Clinic explaining just why it is they love their
>pumps.(Parents especially)Also, if you know of any other resources on
>the net(or off) who might be willing to write, I'd like to contact them
>also. Even if we find another endo, I'd like to see Joslin change their
>attitudes!!Other families would surely benefit.
>Sorry for the length of this letter.
>P.S. Feel free to pass this letter along...
>email @ redacted
>Insulin-Pumpers website http://www.bizsystems.com/Diabetes/
Insulin-Pumpers website http://www.bizsystems.com/Diabetes/