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Re: [IP] Medicare ALJ case

I have been Type I for 62 years; I'm 72.
----- Original Message ----- 
From: "Susan Lane" <email @ redacted>
To: <email @ redacted>
Sent: Friday, July 01, 2011 12:23 AM
Subject: Re: [IP] Medicare ALJ case

> Denise, it's curious to me when you state in point 3, the life expectancy 
> of
> a type I is 68 years.  I have a friend who does some kind of work in the
> insurance world and he studies life expectancy as it pertains to life
> insurance policies and he said that diabetics who take care of their
> diabetes live a long natural life.  In other words, the disease does not 
> cut
> your life short.  The lack of caring for the disease may though.
> I'd like to know if anyone else knows about this.  I'm "lucky" because I
> didn't get the disease as a child.  I got it at the old age of 57.
> On Thu, Jun 30, 2011 at 7:28 PM, Denise <email @ redacted> wrote:
>> Listening to everybody talking about Medicare and being not so far from
>> being on Medicare, what all Type 1's might want to get into, if we can 
>> get
>> the ADA to carry it, is a class action lawsuit.
>> The criticism of the right was that national health care would lead to
>> so-called death squads seems to be correct with regard to people who have
>> Type 1 (insulin-dependent, auto-immune) diabetes because:
>> 1.  All diabetics are required to take a C-peptide test, apparently in 
>> the
>> hope that the need for insulin has magically disappeared and now a 
>> regimen
>> of care suitable for the needs of Type 2 diabetics is all that is needed.
>>  (If the shoe doesn't fit, chop off the toes and ram the foot back in.)
>> 2.  If insulin is needed, Medicare rule-makers do not consider that the
>> most widely used insulins today are not the same as the older, almost
>> obsolete types commonly prescribed in the 1940s, 1950s and 1960s. Apidra,
>> Humalog and Novalog require careful and constant monitoring. Older 
>> insulins
>> like NPH and Lente are not used very much.  (Does anybody know anybody 
>> who
>> is on NPH?)
>> 3.  Type 1 diabetics have a longer life expectancy and a longer survival
>> span.  I just saw an article that said at the ADA's San Diego meeting, 
>> the
>> average life expectancy for a person with Type 1 diabetes is now
>> 68.something years.  (Yippee, I have 10 years left to live, and I'm going 
>> to
>> enjoy them to the max!)
>> 4.  There are new complications from Type 1 diabetes that are becoming 
>> more
>> obvious and appearing more frequently with this longer life-span, such as
>> gastroparesis (pardon my spelling).  Now we need more test strips than 
>> ever
>> before.  Beta blockers also interfere with the ability to sense lows.
>> Washington bureaucrats hear the word "diabetes" and figure that people 
>> over
>> the age of 65 are not going to have "brittle" diabetes.  It's the same
>> mentality that almost killed my Type 1 mother when the nursing home she 
>> was
>> in decided that she didn't need any insulin because her blood sugar was 
>> in
>> the "normal" range.  Well, a BG of 1300 because of her missed 
>> injection(s)
>> wasn't funny.
>> We need to organize!
>> Denise B.
>> On 6/30/2011 7:43 PM, Phyllis wrote:
>>> Shirley,
>>> None of what Medicare or it's payers are doing makes any sense to me. I
>>> will be sure to post the outcome of the ALJ hearing. So far that is the
>>> only item that I have had a problem with; test strips.
>>> I am fortunate to have an Endocrinologist that is willing to be heard at
>>> the hearing and that my supplier is going to speak on my behalf. This is
>>> my last opportunity to appeal , as I understand it, and I will let you
>>> and others know what happens.
>>> I'm also fortunate to have a supplier that is not withholding the test
>>> strips he knows I need and an Endocrinologist that cares for his
>>> patients as if they were his family.
>>> Phyllis
>>> Ft. Myers, Fl.
>>> _____________
>> .
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