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[IP] Re: Kids, pumps and camp
Sadly, most smaller camps(and some larger ones..camp Joslin two years ago
comes to mind) really aren't equipped to handle insulin pumps. My solution
has been to volunteer as a counselor in a different group than the ones my
children have been assigned to. I've done some pump education with the staff
on an as needed basis. We also have student nurses who help and I sat with
the one assigned to my son and gave her a very good lesson in pumps.
Hopefully she takes what I've told her back with her and passes it along. I
even told her that if she EVER works in an ER and a person with D comes in,
they should get permission to call their endos and follow the instructions
they're given and to NOT remove their insulin pumps, if they have one.
JDF would have very little say in a camp run by private sources.Ours is
United Way funded and the JDF and ADA have no say. They can voluntarily
follow the guidelines, but cannot be forced to. Our camp reserves the right
to turn children away for behavioral or safety issues.
Your friends should be greatful the nurse was honest enough to admit her
ignorance and not risk harming their child. If volunteering is an option,
they should in some capacity next year.They may allow the child to stay while
at the same time having what we call at our camp a 'teachable moment". I know
alot of people at our camp were very nervous about Chris' pump last year, but
this year they also had two other kids with pumps there. Part of this is just
fear of the unknown and sometimes allowing people to learn is the best route.
Hope this helps,
Chris 10 dx'd @4, pump 2 years
Angela 11 dx'd @ 9,
Jay 13, and Liz 15
In a message dated 07/21/2000 3:06:07 PM Eastern Daylight Time,
email @ redacted writes:
<< Subject: [IP] Can you believe this!! - pumper turned away from D camp
Just received this from a friend with a five year old who just started
pumping a few weeks ago......UNBELIEVABLE!!!!!!!!!
Well Steve, if you think your ice king issue was large.....listen to
Jake, Peter & I went to orientation for a diabetes camp that Jake
would be attending on Mon. It is run by the Lion's club & held at
Friends Academy in Locust Valley (long island, NY). The
orientation was going great until the "Nurse" started telling us
about how to send the syringes, etc. At that point, I asked her if
there were any other kids who would be attending on the pump.
She looked at me as if she were really seeing Jimmy Hoffa!! She
said in a shaking voice "oh no, I don't do pumps" I actually thought
she was kidding. Well, unfortunately, she was not kidding.
Hmmm...what a story that would be...a diabetes camp which does
not take children with diabetes. Do you think this is an issue for
JDF to address? My son and one other boy who is 10 left there
feeling quite badly! They were the only 2 pumpers in the group.
Jake was supposed to start camp on Monday...I guess not! Peter
is at this moment on the phone with my brother the lawyer....I am
trying to calm him down once again!!! If you have any
ideas....let me know! Carolyn
Any help here???
Steve Winer >>
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