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Re: [IP] Re: Diabetes Burnout
Amen to the Rev. ! - such a good way to share..such a good way to put it!
Thank you so very much! I think this needs to be read again so I am not
email @ redacted
At 10:26 PM 07/15/2000 -0500, you wrote:
>On 14 Jul 00, at 4:35, Clifford Tener wrote:
>> I can't believe you people "Diabetes Burnout". Does
>> this mean you don't want to try to live with diabetes?
>No, it just means that sometimes we get tired of all the stuff we have to do
>to live with diabetes. Things like always remembering to have your
>emergency kit with you - the spare insulin, infusion set, food, meter and
>everything else. We can legitimately get tired of not being able to do
>anything "on the spur of the moment" but always having to be planning
>ahead and alert for the next monkey wrench in the works that this condition
>is going to throw us. How about someone coming to your door and asking you
>to come with them for a quick trip to visit someone who's in the hospital
>town 50 miles away - and having to carry the briefcase/backpack full of all
>the stuff you might need. You cannot leave it in the car because it doesn't
>need to cook in the heat and what if your car got smashed by a truck (don't
>laugh until it happens to you!) or towed off or otherwise blocked to your
>access. You need the stuff because in the time it takes to make the trip
>could be in trouble (unsafe or unable to drive, or at least feeling very,
>bad!) if you had to run back home to change a set, check your bg or handle
>one of those unpredictable challenges that we are constantly encountering.
>I run into this all the time given my areas of work.
>> I take everyday as a challenge, to make my numbers.
>> Some days I fail but I try never the less.
>One of the facts of diabetes is that some people have a more difficult time
>controlling it than others. I know of a few people who manage to have an
>A1c of around 6.0 with just the old R/NPH two shot a day routine while
>other people who are using a pump and intense therapy protocol still have
>problems keeping their bg stable for a few hours, much less worry about
>their A1c. For many of us it seems that things go well for a while then get
>difficult for a while - and when they are difficult it's not just a one or
>day thing but it lasts for months... Ever had one of those days when you've
>changed your infusion set five or six times because their either extremely
>painful or you took a 15 unit bolus two hours ago and your bg is still
>ramping up and is now going over 350? Those are the kinds of days when a
>combination of physiological, emotional and physical states combine to
>produce what we've called "Diabetes burnout". This effect is due to many
>factors, one of which is usually that the person has been doing everything
>right but nothing is working - and after you've tried eveything in the book
>and several variations on each one you're left with nothing else to try and
>you're still stuck in a situation where all your experience and training
>you you need to do something...
>One of the contributing factors is "helpful" people around us - one of my
>worst episodes of burnout included attending a dinner where the hostess
>told everyone about her wonderful new dessert and even had the nutritional
>information ready for me - but she forgot to tell me that she had made a
>few changes, like substituting Equal for the sugar. Then about an hour
>I was crashing because I had bolused for what I was supposed to be eating
>instead of what we actually had... or the converse happens - when you eat
>out and discover that the cook has improved the recipe by adding a couple
>of cups of brown sugar to the chili and doesn't tell you because it's a
>secret ingredient. Or the person who grabs something you're eating out of
>your hand because their cousin's inlaw's great aunt Maxilea had diabetes
>and she never could eat bread, pizza, drink a soft drink (even diet) or
>whatever food item they remember... and then they hand you something
>sweetened with honey because "it's natural and won't hurt a diabetic"...
>Some of us fight these battles day in, day out, day in, day out, day in, day
>out,... and there comes a point where you just want to stay at home, hide
>out and do the bare minimum you can to stay alive for a few days. That's
>what diabetes burnout is...
>> only 7 months but I think that burnout is something
>> that you give yourself. Diabetes Burnout, I think
>> not, be glad you are alive. Put that (Diabetes
>> Burnout) in your attitude and get over it.
>Consider yourself fortunate that everything seems to work well for you all
>the time. Not everyone is able to get by as easily and some of us put a
>great deal of effort into keeping our numbers on track while trying to live
>a somewhat normal lifestyle at the same time. Remember to think kind
>thoughts about us when we seem to be struggling in ways that may be
>difficult to comprehend. We don't understand it either, we just know that
>we're having a tough time at the moment. Over the past 18 years I figure
>that I have spent about 10,000 hours trying to manage this condition.
>That's roughly equivalent to five working years (full time) - and I've been
>told by doctors and CDE's that I seem to get by with much less effort than
>some of their patients (I don't weigh most of my food and since I use a
>computer to handle the statistical analysis I have an advantage over people
>who are doing it all manually).
>Try to understand that Diabetes burnout is exactly the same kind of
>burnout as other more fashionable kinds - like caregivers burnout, sales
>burnout, sports burnout or whatever kind of condition is caused by
>constantly being on call, in the spotlight and in demand when you're at the
>point of not having anything left to give... we don't choose it, we don't
>it, it's not any fun at all. We just try to marshall our resources and get
>through it... For many of us the pump is much easier than the tight control
>protocol (intensive injection therapy) with it's four to six shots a day
>the rollercoaster to failure scenario programmed into it...
>Rev. Randall Winchester
>WD4HVA (email @ redacted)
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