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Re: [IP] Re: Diabetes Burnout

Well said.... infact I won't even add another word :-) Sharon Sp---------- Original Message ----------------------------------
From: email @ redacted
Reply-To: email @ redacted
Date: Sat, 15 Jul 2000 22:26:02 -0500

>On 14 Jul 00, at 4:35, Clifford Tener wrote:
>> I can't believe you people "Diabetes Burnout".  Does
>> this mean you don't want to try to live with diabetes?
>No, it just means that sometimes we get tired of all the stuff we have to do 
>to live with diabetes.  Things like always remembering to have your 
>emergency kit with you - the spare insulin, infusion set, food, meter and 
>everything else.  We can legitimately get tired of not being able to do 
>anything "on the spur of the moment" but always having to be planning 
>ahead and alert for the next monkey wrench in the works that this condition 
>is going to throw us.  How about someone coming to your door and asking you 
>to come with them for a quick trip to visit someone who's in the hospital in a 
>town 50 miles away - and having to carry the briefcase/backpack full of all 
>the stuff you might need.  You cannot leave it in the car because it doesn't 
>need to cook in the heat and what if your car got smashed by a truck (don't 
>laugh until it happens to you!) or towed off or otherwise blocked to your 
>access.  You need the stuff because in the time it takes to make the trip you 
>could be in trouble (unsafe or unable to drive, or at least feeling very, very 
>bad!) if you had to run back home to change a set, check your bg or handle 
>one of those unpredictable challenges that we are constantly encountering.  
>I run into this all the time given my areas of work.
>>  I take everyday as a challenge, to make my numbers. 
>> Some days I fail but I try never the less.
>One of the facts of diabetes is that some people have a more difficult time 
>controlling it than others.  I know of a few people who manage to have an 
>A1c of around 6.0 with just the old R/NPH two shot a day routine while 
>other people who are using a pump and intense therapy protocol still have 
>problems keeping their bg stable for a few hours, much less worry about 
>their A1c.  For many of us it seems that things go well for a while then get 
>difficult for a while - and when they are difficult it's not just a one or two 
>day thing but it lasts for months...  Ever had one of those days when you've 
>changed your infusion set five or six times because their either extremely 
>painful or you took a 15 unit bolus two hours ago and your bg is still 
>ramping up and is now going over 350?  Those are the kinds of days when a 
>combination of physiological, emotional and physical states combine to 
>produce what we've called "Diabetes burnout".  This effect is due to many 
>factors, one of which is usually that the person has been doing everything 
>right but nothing is working - and after you've tried eveything in the book 
>and several variations on each one you're left with nothing else to try and 
>you're still stuck in a situation where all your experience and training tells 
>you you need to do something...
>One of the contributing factors is "helpful" people around us - one of my 
>worst episodes of burnout included attending a dinner where the hostess 
>told everyone about her wonderful new dessert and even had the nutritional 
>information ready for me - but she forgot to tell me that she had made a 
>few changes, like substituting Equal for the sugar.  Then about an hour later 
>I was crashing because I had bolused for what I was supposed to be eating 
>instead of what we actually had... or the converse happens - when you eat 
>out and discover that the cook has improved the recipe by adding a couple 
>of cups of brown sugar to the chili and doesn't tell you because it's a 
>secret ingredient.  Or the person who grabs something you're eating out of 
>your hand because their cousin's inlaw's great aunt Maxilea had diabetes 
>and she never could eat bread, pizza, drink a soft drink (even diet) or 
>whatever food item they remember... and then they hand you something 
>sweetened with honey because "it's natural and won't hurt a diabetic"...  
>Some of us fight these battles day in, day out, day in, day out, day in, day 
>out,...   and there comes a point where you just want to stay at home, hide 
>out and do the bare minimum you can to stay alive for a few days.  That's 
>what diabetes burnout is...
>> only 7 months but I think that burnout is something
>> that you give yourself.  Diabetes Burnout, I think
>> not, be glad you are alive.  Put that (Diabetes
>> Burnout) in your attitude and get over it. 
>Consider yourself fortunate that everything seems to work well for you all 
>the time.  Not everyone is able to get by as easily and some of us put a 
>great deal of effort into keeping our numbers on track while trying to live 
>a somewhat normal lifestyle at the same time.  Remember to think kind 
>thoughts about us when we seem to be struggling in ways that may be 
>difficult to comprehend.  We don't understand it either, we just know that 
>we're having a tough time at the moment.  Over the past 18 years I figure 
>that I have spent about 10,000 hours trying to manage this condition.  
>That's roughly equivalent to five working years (full time) - and I've been 
>told by doctors and CDE's that I seem to get by with much less effort than 
>some of their patients (I don't weigh most of my food and since I use a 
>computer to handle the statistical analysis I have an advantage over people 
>who are doing it all manually).  
>Try to understand that Diabetes burnout is exactly the same kind of 
>burnout as other more fashionable kinds - like caregivers burnout, sales 
>burnout, sports burnout or whatever kind of condition is caused by 
>constantly being on call, in the spotlight and in demand  when you're at the 
>point of not having anything left to give...  we don't choose it, we don't like 
>it, it's not any fun at all.  We just try to marshall our resources and get 
>through it... For many of us the pump is much easier than the tight control 
>protocol (intensive injection therapy) with it's four to six shots a day ride 
>the rollercoaster to failure scenario programmed into it...
>Rev. Randall Winchester
>WD4HVA (email @ redacted)
>for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
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for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
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