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Re: [IP] Re: birthday parties & Type II Amy
In a message dated 7/24/99 7:14:47 PM Central Daylight Time, email @ redacted
<< But I didn't think to research my own
disease. I relied on the docs and they didn't tell me about DM, either. >>
Jan, Brilliant Post!!! I loved it. I am Type 1 for 39 years, but I relate
very well to what you said. Doctors NEVER have given me enough information
to be useful. I have always had to find it on my own.
One of my pet peeves is a dr. who says "you're non-compliant" or "you're not
following your diet". I'd like to tell them: Quit pointing your finger at
me. It is not me, it is this damn disease I have. It is a case of blaming
the victim and I am sick of it. I do not consider !DD a manageable disease.
If you have ever had a low or high, it is not manageable as far as I'm
concerned. The Pump is NOT a cure. It is an instrument to assist in
management. Sure, I have much better control on the pump(my a1c averages
6.0), but I expect those complications from dm to continue even with tight
Just as some drs. and endos do not want their patients on a pump, try asking
your pump endo about transplants? I have. He doesn't want to discuss it.
Why? I don't know, but I have sent off for some info. Tmt for dm should be
about choices: mdi, which pump, transplant. We are all different, but we
need to know what is available now. I want to make the decision. I don't
want my dr. deciding what I need to know and what I don't need to know.
I learned more about IDD from reading Pumping Insulin than I ever have
learned from any dr., endo, cde. I want to be informed. Thank God for the
internet. It is much easier to get info because of it.
OK, I have vented enough. Thanks Jan. I think you expressed clearly that
people need information badly, but find that it is very difficult to get.
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