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Re: [IP] Camp Caution

On 21 Jul 98 at 15:40, email @ redacted wrote:

> This is for those parents that are disturbed by Katie's caution.  I went to
> camp at 9 and I noticed the bad habits of some campers.  For instance, the
> kids who would use water instead of urine for their tests.  Yes, this does
> occur, but I personally did not understand why these kids did this.  It wasn't
> like we were beaten for a bad test.  The camp explained that they were going
> to help the campers have better control which in turn helped us feel better.
> I, for one, wanted to feel better.  I never quite understood these campers'
> motivations and just dismissed them as "stupid".  I might be off the mark
> here, but I think any child who is adequately "educated concerning diabetes"
> by parent or dr. will not get involved in such activities.  ellen

The problem begins when some "professionals" punish their patients 
for "non-compliance" when their numbers aren't on target.  Some of 
these people still think that if you follow their instructions 
exactly then your bg values will be fine - period.  If your numbers 
don't fall on target, then you've been a bad, bad, bad, bad person 
and you must be punished.  It doesn't matter if you've had the flu, 
been exercising a lot or unable to exercise for some reason - you 
just aren't worth much as a person because you don't "measure up."  
One of my biggest challenges in counseling people with medical 
problems is dealing with these quacks.  Many of them are highly 
respected "medical profesionals" who just don't want to understand 
human physiology as it relates to insulin, metabolism, activity and 
diet.  Like our often mentioned "Dr. Death" and his "one-basal-rate 
fits all" approach, they oversimplify the world using faulty 
assumptions and then punish their patients for their own failures.  
It doesn't take too many visits to a doctor like this for even adults 
to start "fudging" or outright falsifying test results.  

Sometimes children want to please their parents, doctors and others 
by having "good" values.  This is an additional pressure that is 
often placed on children - that their value as a person is somehow 
linked to their bg values.  

The key is education - of the professionals to where they understand 
that these bg values are point measurements in time and are only 
useful as data points to help refine analysis and treatment.  
Education of the patient to the point of understanding that the 
values are not measures of how "good" you are but instead are 
measures of how effective the doctor's treatment plan is.   Only 
then can the numbers become useful tools instead of score points.    
The best regimine, treatment plan or strategy is worthless if it 
cannot be complied with - and for too many years people with diabetes 
were given unworkable regimines to try to deal with and then punished 
when the plans didn't bring about the desired response.  

Any child who is adequately educated and dealt with rationally and 
fairly probably won't fall prey to these types of activities.  Any 
child who finds that they are being scored and valued by their bg 
levels will quickly begin to invent these activities themselves as a 
survival mechanism.   
Randall Winchester

* The views expressed here are mine and do not necessarily *
* reflect the official position of my employer.            *
* There's no guarantee on anything said here...
* If I say I understand something completely the only thing
* we can both be assured of is that I must have completely
* misunderstood something. 
Insulin-Pumpers website http://www.bizsystems.com/Diabetes/
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