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Re: [IP] Frustrated, need to vent!



I am on SSI so I get medicaid, not Medicare. Arizona medicaid aka AHCCCS 
does not cover pumps or cgms for adults over 21. They stopped covering 
them about 2-3 years ago and my endo has appealed many times and has 
lost for people worse off than me. It's pathetic if you ask me.


On 1/26/2014 12:01 PM, Richard Price wrote:
 > I think that if you could get your Hba1c down, your problems would be
reduced.
> Insulin is a very powerful drug and when not properly administered it can
> magnify other problems.
>
>   How to get it down would be simplified with a pump and CGM, but if your
 > insurance doesn't cover pumps and CGM's perhaps going on disability might be
a
 > way to go. If you are on disability you should be able to get a pump a d
CGMQ.
>
> Richard
>
>
>
> On Jan 25, 2014, at 2:35 AM, SomeoneSomewhere <email @ redacted> wrote:
>
>> I don't post here much and I don't know who else to vent to so I hope
>> you all don't mind. Please keep in mind, I am not looking for judgement
>> for the choices I am making right now. If you have such, please keep
>> them to yourself.
>>
>> My diabetes (last a1c 9.9), neuropathy (lots of untreated pain),
>> gastroparesis (lots of untreated vomiting because I am limited to very
>> few foods
>> <http://www.emilysstomach.com/2013/01/gastroparesis-diet-from-mayo.html>
>> not to mention the food allergies I have), neurogenic bladder (peeing
>> myself all the time or cant pee at all) and my blood pressure etc are
>> all out of control. I have been to dr after dr trying to get help and as
>> one dr put it frankly, if I am not going to help myself (by losing
>> weight and getting my a1c down etc) there is nothing she can or will do
>> for me. This dr told me that she expects me to vigorously exercise for
>> the next 8 weeks until I see her again. I told her I need to take baby
>> steps and she huffed and said well when you are ready you just let me
>> know. I can't sit up without my blood pressure raising by 40-50 points
>> and it makes me woozy and so I have to stay in bed half the time. The
>> other half the time is because I am in so much pain, I am exhausted
>> because I sleep an hour or so at a time. I can't walk more than 30 yards
>> to take out my garbage without being out of breath and so exhausted when
>> I get back I fall asleep. My PCP called me into her office because she
>> has received similar letters from other dr's she has referred me to
>> lately. They have also boiled things down to my problems being
>> psychologically based.
>>
>> I do have an adrenal tumor which is sporadically producing
>> norepinephrine and my aldosterone levels are either borderline high or
>> almost nill. My cortisol level likewise is not giving consistent numbers
>> and I am waiting for a 24 hour cortisol test to come back. This is part
>> of the reason I am seeing so many specialists. I am convinced my
>> diabetes is so out of control because of my adrenal gland or some other
>> hormone causing things to truly be out of my control. Back in Sept, I
>> was forced into a psychiatric ward under the threat of being petitioned
>> by the court because my diabetes is out of control and it must be my
>> fault. I was screamed at twice by the medical doctor there for stealing
>> food, hiding food you name it.
>>
>> Several doctors suggested an insulin pump, however my insurance does not
>> cover one yet they cover the supplies. So I contacted the Charles Ray
>> III Association and they said they would sell me a refurbished one for
>> $1,360 cash. I am on disability and that is twice what I get a month,
>> and I don't qualify for a credit card. I have sold a lot of my things
>> trying to save for it but instead the money has gone to Glucerna. My
>> insurance won't pay for that either unless I have a feeding tube.
>>
>> My blood sugar has bordered on 600 many times in the last few months and
>> my blood pressure spikes puts me at imminent risk of a heart attack or a
>> stroke.
>>
>> I called my insurance about bariatric surgery and they said I don't
>> qualify because my BMI is slightly too low (34 and it has to be 35) and
>> because they require that I prove for 6 months that I exercise and I eat
>> fruits and veggies.
>>
>> I don't know what else to do except starve myself. In the last 10 days I
>> have eaten either nothing at all, including juice or glucerna or when I
>> have had a single Glucerna, I stop losing weight. I have lost some
>> weight but I am stuck and I have gained 2 lbs back from drinking 1
>> Glucerna a day the last 2 days. Honestly, I am contemplating taking meth
>> to lose weight, and I abhor drugs.
>>
>> On top of it all, I am quickly losing my vision. I can't even read a
>> book. My CDE gave me two paperbacks and I told her I couldn't read them
>> and she insisted that my vision will fluctuate and I will be able to
>> read them. I was so upset tonight I tore up one of those books. I would
>> have never done that ever before. I value books.
>>
>> I know this sounds drastic but I am going to die if I don't do something
>> and dr's wont help me. I have switched drs many times and I get this
>> same attitude from all of them. Either doctors are too ignorant and/or
>> lazy to see if something is wrong with me that is out of my control, or
>> something is essentially wrong with me and I don't deserve to be treated
>> and to live.
>>
>> I am just stuck between a rock and a hard place and I need help and no
>> one will help me. I really don't want to die.
>>
>> Again, not looking for judgement. Reasonable advice will be considered
>> but please keep in mind I have multiple extremely complicated things
>> going on.
>>
>> Louree
>> .
>> Follow us at https://www.twitter.com/insulinpumpers
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> .
> Follow us at https://www.twitter.com/insulinpumpers
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