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[IP] Parents' reflections on managing their children's diabetes with insulin pumps



J Nurs Scholarsh. 2004;36(4):316-23. Related Articles, Links  


Parents' reflections on managing their children's diabetes with insulin pumps.

Sullivan-Bolyai S, Knafl K, Tamborlane W, Grey M.

 University of Massachusetts, Graduate School of Nursing, 55 Lake Ave., North
Worcester, MA 01655-0002, USA. email @ redacted

 PURPOSE: To describe the experiences of parents managing the type 1 diabetes of
their young children using an insulin pump. DESIGN: Qualitative description,
based on principles of naturalistic inquiry. METHODS: Open-ended, in-depth
interviews were conducted with 21 mothers and fathers of 16 children less than
12 years old in the eastern part of the United States. The children had been on
pump treatment from 3 to 36 months. Data were managed and analyzed using
qualitative content analysis. FINDINGS: Parents reported becoming comfortable
with pump management 10 days to 2-3 months after the child started using it.
During this adjustment period, they had to "rethink" how they managed the
disease. Although using the pump required vigilance and more frequent glucose
checking than did multiple daily injections (MDI), the pump provided better
glucose control, easier disease management, fewer variables to manipulate, and
more flexible meal times. A few parents were tempted to more tightly control the
child's glucose levels, which could potentially increase parental stress.
Fathers were actively involved in the day-to-day management and benefited from
opportunities to participate in the child's care. They emphasized the importance
of practicing the tasks associated with diabetes management to improve their
confidence when caring for the child alone. Parents reported that everyone in
the family experienced more freedom, flexibility, and spontaneity in their daily
lives. CONCLUSIONS: For this sample of parents, the health and management
benefits of their children's use of the insulin pump outweighed the adjustment
challenges involved in changing from MDI.

PMID: 15636411 [PubMed - in process] 


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-- 
Very sincerely yours,
Ellen H. Ullman 
 Mom, Advocate for children who have diabetes and their parents, Friend,
Webmaster.. Kids R Pumping
 Please support funding a cure for diabetes: Diabetes Research Institute in
Miami, Florida: http://www.drinet.org

 "I realized that resignation to suffering from diabetes substitutes poorly for
the courage to manage it appropriately." Melissa P. Ford, doctoral student in
early modern British history at Oxford University; founding coordinator of the
Oxford University Student Union Diabetes Network; member of Balliol College
.
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