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[IP] Re: JDRF



Wow Donna,
 
 I've never had any contact with JDRF (other than requests for money) but I'm
impressed that they contacted you to set up a meeting! I am a 56-year-old
juvenile diabetic who grew up without any support to speak of other than my
mom's attempts but I felt isolated and "different," not good feelings for a
child.
 
 I generally look to the American Diabetes Assoc. for information and guidance,
but I think JDRF could do something for us "adult juveniles," like maybe
offering support groups and more diabetes related information geared toward the
"adult juvenile" for starters. The children they are trying to help now will
eventually become adults but they will still have juvenile diabetes; at some
point will they graduate from the JDRF?
 
Sybil and (???Can'tDecide???) the Animas IR1200 pump
http://www.sbvdrsilkycrsilky.com
 
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Date: Sat, 8 Jan 2005 13:07:24 -0600
From: "Donna S." <email @ redacted>
Subject: [IP] Need ideas

Hi everyone - emailed the local JDRF when I was in a very bad mood and 
told them that thanks to their help many of us had lived to the point where 
we no longer "fit in". Okay, it was in response to a mailing they sent 
 regarding upcoming events for "my child". I told them they should be sending
the
mailing to my 90 year old parents but they probably wouldn't be able to 
make the meeting. Also suggested that JDRF really is there for parents and
children who are dealing with Type 1 and the American Diabetes Assoc is
mainly there for Type 2 so where does that leave most of us in this 
group?  Well, they called my bluff and want to meet with me next week to 
discuss what they can do to include adult Type 1's. Any ideas/suggestions? I 
had what I thought were a few good ideas when we first began checking 
schedules to set up the meeting but didn't write them down.  Thanks. . .  Donna
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