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Re: [IP] Anyone like to comment.



Michael,
I agree with your view.  This is just an example of a rule that needs to be
revisited, probably a rule based on fear, having to do with money.
It is frustrating.
Connie

Michael wrote:

> hi pumpers,
>
> Following up on the story of the newborn that is pumping, I sent a
> request to the newspaper requesting that we be allowed to use their
> story verbatim on the web site to let parents know that there that
> pump technology can be used for very young children. Here is the
> exchange. If you would like to send a comment to Mr. Fellone, be my
> guest.
>
> The messages are listed in the order sent/received
>
> Michael
>
> >From: "Michael" <email @ redacted>
> >To: email @ redacted
> >Subject: Re: [IP] Insulin pump used to treat diabetic baby - article
> >Date: Tue, Jan 23, 2001, 10:58 AM
> >
>
> >> Arkansas Democrat-Gazette
> >> Insulin pump used to treat diabetic baby
> >>
> >> Date: 8/3/2000
> >> Category: NWAnews
> >> Page: A1
> >>
> >> ARIEL R. FRANK ARKANSAS DEMOCRAT-GAZETTE
> >> *NW EDITION*
> >
> > Hi Frank,
> >
> > My name is Michael Robinton and I am the Executive Directory of a
> > non-profit group called Insulin Pumpers that helps folks with
> > diabetes. I would like to reproduce the article about Maverick Coe
> > on the Kids page of our web site and use it to replace the existing
> > piece about the 5 week old youngster in Germany.
> >
> > Please see:
> >
> > http://www.insulin-pumpers.org/pkids.shtml
> > "The World's Youngest Pumper "
> ###########################################
> Dear Mr. Robinton,
>     Sorry, but we have a policy against website postings or reprints.
>     I
> regret, but we must decline permission.
> Frank Fellone
> Deputy Editor
> ###########################################
> > Ok, I guess I will just interview the MiniMed rep and the parents.
> > It would be nice when there is a story like this that gives hope to
> > parents and kids with diabetes, to spread the news around. It's is
> > hard enough living with diabetes without having to deal with rules
> > that don't make sense.
> >
> > Michael
> > email @ redacted
> ###########################################
> Mr. Robinton,
>     Do you give away your product? Neither do we.
> Frank Fellone
> ###########################################
>
> I replyed to this, but did not keep a copy. The gist of the message
> was that Insulin Pumpers is a non-profit organization. All of our
> services are given away. The Arkansas Review (whatever??) has
> everything to gain an nothing to lose by allowing publication of it's
> article. Parents of kids with diabetes from all over the world
> reading the article would become aware of the Arkansas Review?? when
> they saw the article and would also gain a bit of hope that their
> child could be helped as well. It is to bad that management has such
> a narrow view that a bit of charitable work can not be done.
>
> ---------------
> Michael
> email @ redacted
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