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Re: [IP] Living with Diabetes Psychologically

Right on target, Natalie! And I, for one, kinda like your rants! Keep them

----- Original Message -----
From: <email @ redacted>
To: <email @ redacted>
Sent: Wednesday, January 03, 2001 10:51 AM
Subject: [IP] Living with Diabetes Psychologically

> I've been following the discussion of friends and family with great
> interest -- different people express themselves differently, but I
> really don't think there is all that much disagreement.
> I've always felt that, as diabetics, we're in a damned if you do, damned
> if you don't situation.
> All the adorable little children are just that, really cute and active
> and ALIVE and healthy-looking, and it's hard for the public to
> understand that they are children at risk -- it's a WHOLE lot easier to
> feel compassion for a child in a wheelchair.
> We WANT to be active and happy and lead as normal a life as possible,
> free of discrimination, but we ALSO want to receive the accommodations
> we need in school, sports, camp, work, etc. That's a complex idea, and
> hard for the public to understand -- to them, it seems like we want it
> both ways.
> Much of what we do goes on in our heads, and the public doesn't see
> that, either -- all they see is the syringe (or pushing the buttons on
> our "pagers", and they don't know how much thought has gone into making
> the decision of how much insulin to take, nor do they feel the anxiety
> of what will happen if I made the wrong decision.
> All they see is that I just slipped a glucose tablet into my mouth --
> they didn't perceive the panicky feeling of going hypo, nor do they feel
> the icky-sticky feeling of being too high, because they can't see it.
> And if I talk about it too much, their eyes glaze over, because they
> REALLY can't understand.
> I figure we need a lot of patience, and good humor -- we're not dealing
> with evil intentions, just ignorance that may not even know it's
> ignorant.
> As far as what to tell a child, I really think it depends on the child's
> age and maturity level, but I think you can be honest. You don't have to
> go into all the details, but the answer to why I have to take insulin
> and measure BGs, etc. is surely "in order to stay healthy, and not feel
> sick." At some point, they become aware that diabetes can cause
> complications, and again, the honest answer is that no one knows whether
> a certain individual will get complications, so we do the best we can
> with what we have. We try to keep good BGs not only because it improves
> our CHANCES of not getting complications (but no guarantee), but we
> really DO feel better when our BGs are in a good range.
> Immediate feelings need to be recognized -- there ARE times when it's
> emotionally too much, and that needs to be accepted -- the feeling is
> valid, even if there is no choice as to action. ANY chronic disease is a
> pain in the butt -- and just because there ARE others that are worse
> doesn't make me feel any better.
> HOWEVER, I think the attitude needs to be that we work on accepting what
> we have to accept and get on with our lives because we can't change it.
> Possibilities of death and disability mustn't be allowed to become
> obsessions -- if something happens, we'll deal with it, but why worry
> when it just might NOT happen!
> OK, end of soapbox -- a rather moderate one if you know me!
>  ._c- ._c- ._c- ._c- ._c- ._c- ._c- ._c- ._c- ._c- ._c- ._c- ._c-
>  Natalie A. Sera, with all her ducks in a row!
>  Type Weird, pumping!
>  mailto:email @ redacted
>  ._c- ._c- ._c- ._c- ._c- ._c- ._c- ._c-._c- ._c- ._(` ._c- ._c-
>                               (
>                                0
>  Can YOU find the ugly duckling? (Hint: it ain't the pumperduck!)
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