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[IP] Boy, I wish she had a pump! Kinda long
As most of you know, my daughter Caitlyn is currently on MDI, but we
are still trying to get a pump. I want to share how frusterated I am by
showing what Caitlyn went through yesterday:
8:00 With father away from home BG 139 (yeah!) has 1 1/2 H & 6 1/2 N
had cereal for breakfast and ritz bits PB crackers for snack
(please keep in mind that she uses 1 Unit for 45 carb's)
11:30 Daycare tests. She is 39. She is treated with juice and eats her
normal lunch. 30 minutes later, she is 95.
4 pm She seems cranky, she tests and is 135. She eats 1 serving of
Goldfish crackers for snack.
6:45 She tests and is 62. She gets 6 oz of coke (19.5 grams of carb)
and refuses to eat more than 3 bites of steamed rice & 1 bite
of chicken. She tests again and her fastake meter reads "HI".
retests and it again reads "HI" (HI means over 600 on
the fastake!) Receives 2 units of H & 3 1/2 Ultralente.
10:00 Tests and is 260. Has some string cheese and goes to bed.
Here is my question: What caused her swing? And could a pump have
possibly avoided this kind of swing? Should I be hollering and
screaming at her diabetes team that MDI isn't working and they need to
deal with it? Last time I pointed the swings out, they put her on a 4th
insulin (regular), and it only made the swings worse! I have been SO
careful with the carb counting, I am getting seriously frusterated with
this lack of control. Her last a1c (in November) was 8.8. The swings
toward the highs seem to be getting more frequent. When I change her
carb ratio, she inevitably goes low. I can't help but think that things
might be different if I could work with tenths of a unit, instead of
just whole or half units.
Her Pediatrician is recommending her to the UCSF medical group for a
pump evaluation. I have to wait for her Ped (a Kaiser doctor) to call
them, and then wait for them to send me the paper work so that I can
call and make an appt. I vow that they will be called the very SECOND I
receive the paper work! Boy, I wish she had a pump!
Thanks for listening and for any feedback you can provide me!
Carrie, mom to Caitlyn, dx'd 20 months, turns 5 on 2-20-00
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