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Re: [IP] what to tell the kids
>If anyone whose grown up with diabetes has any
>suggestions on how to handle this, please speak up.
>It's very hard.
Congrats on being a great mom and seeking input on this issue! It's one of
my favs as I grew up from age 9 with DM and have strong feelings on this
Briefly, as a 9 year old, I was well aquainted about complications and this
was OK with me. At age 9; such things seem as far away as old age. Note
#1: A kid must know these don't happen overnight but are a long ways off
if at all. That helps.
However, I was lied to. I was told over & over that if I kept "good
control"; I would never get complications. I did the best i could. I
still got complications several decades later. Note #2: DO NOT LIE to
kids. They must understand that no matter how well they work at good DM;
complications may occur anyway! Otherwise when one is diagnosed with a
complication we tend to blame ourselves and not the disease. This creates
guilt, anger and depression in many cases.
Deal optimistically and realistically with the FACTS: Good control makes
us feel better. Good control *will* delay complications. Whether or not
we get complications depends on things we do not yet understand. "However;
it is important to keep good control in case you are one of the many who
will not get complications until old age". I wish I had been told this.
Speaking as a 9 year old; please do not lie to me. My last ten years would
have been so much easier if I had known that it's my genetics and not my bg
control that dicatate when I'll lose 100% kidney function etc.
Now a days; we can tell kids that a control is near - probably within 10
years at last! And hence, the goal is simply to stay healthy until the
perfect control is developed. for the first in history; closed-loop pumps
and cell transplants are looking viable in the next 10-20 years! Wow!
Kids today are so fortunate! They have more to look forward to then I did,
28 years ago!
Go for it, Marina. Tell him the truth he deserves. It's a wonderful truth!
Nova Scotia, Canada!
Pumping for 2 months thanks to the support of wonderful internet friends!
In 5 days on the pump I obtained better control than I had done in 27 years
of MDI! (To date: 50% improvement in average bg's and 85% fewer hypos)!
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