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Re: [IP] Pump training time (was...pump Mom)
When Melissa decided to get the insulin pump in January of 1996, the MM
rep did all the "groundwork", including contacting our insurance company &
VOILA, the pump package arrived within a few months - a full month prior to
our scheduled training at the local Children's Hospital. Melissa (who'd just
turned 13) watched the video twice, played with the buttons, and that pretty
much accounted for our "pre-pump training"!
March 15th - yep, the Ides of March - we arrived at the hospital, met in
an exam room with the pump-wearing trainer who worked for MM as a rep., and
Melissa's ped. endo. When the trainer asked the endo for Melissa's
basal/bolus rates, the endo looked at her blankly & excused herself from the
room....Hmmmmm....Should I mention that no one bothered to tell us this endo
had never had a pump patient before?????
Anyway, Melissa grasped the mechanics so quickly that the rep. joked that
she could go home early! As is, we were out of there within 2 hours &
downstairs eating lunch at McDonald's, doing a crash course in carb counting
( which she hadn't really been doing at all prior to then, if I remember
correctly) & basically "winging it"!
Luckily, the pump supplies had come from Home Medical in Florida, where it
seemed as if everyone hired there was a pumper~!! Thanks to their help & my
frequent phone calls, we survived that first weekend....
Within 3 months, I'd decided we were not getting the input & knowledge
about pumping that we needed, so we left the hospital, switched to an adult
diabetologist & also began seeing a local CDE, Gary Scheiner (aka "Gary
Guru") with whom Melissa STILL has a working relationship (including having
started a local Teens in Control support group). I also purchased "Pumping
Insulin" and felt like I'd been handed the "operator's manual" that SHOULD
HAVE been packaged with the pump!!! ( and yes, I DID call MM and tell them
precisely that!!!) All that we know today about pump therapy is attributable
to Gary and to my cyber-activism, especially with the IP group and the
Childrenwith diabetes website. In fact, the other evening at the Xmas party
where you & I met ( and by the way Ip-ers, Barb is as delightful in person as
she is on-line!!!), someone asked me how I'd gained so much knowledge and I
replied "on the job training!!!"
So, if I were to use a 1 to 10 scale for how well-trained we were for
instituting pump therapy, our personal story would probably rate a minus
one!!!! Sadly, having recently spoken to a few parents whose children have
started on pumps at the same hospital, I haven't detected a dramatic
improvement in the procedures!
My conclusion: we just all have to become card-carrying members of
Natalie's DUES (diabetes education underground system) club!!
Regards, Renee (pump-mom)
for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org
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- [IP] DUES
- From: "Natalie A. Sera" <email @ redacted>