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Re: [IP] Re: Administrative procedures, students using insulin p
> I need feedback from parents or an attorney with regard to testing
> at THE STUDENTS DESK. The school district has finally realized that
> there are kids who have been testing at the desk and sought the
> advice from their school districts attorney. Their procedure reads
> as follows: glucose testing will not be permitted at the student's
> desk. All testing must be completed away from other students in
> order to prohibit the possibility of blood contaminationand/or blood
> splattering of other students. Upon completion of testing, all
> sharps must be placed in an appropriated container. ( they want the
> child to go to the back of the room. This must occur from the
> elementary level through the high school level) When I mentioned the
> 504 act(thankyou Curtis) and stated that my child's needs were not
> being accommodated and that going to back of the room would be
> disruptive to the educational process. His answer was "I must
> protect the other students from blood born diseases, mostly
> hepatitis, and that this is not negotiable. He, The director of
> student services, said there were 3 incidences of exposure in 1999
> from student testing. There is a meeting on 9/14 with the school
> board. Can anybody help. THANK YOU!!! Alecia (mother of Ian,
> pumping since 8/99)
Be prepared to get a possible ration of s--t from the school, they
sometimes don't like to deal with 504's.
Here is the hard-line drill (if needed)
1.) Set up an individual health care plan(IHCP) with your school
nurse(or health office coordinator). BE VERY SPECIFIC. This document
needs to be signed by the school district's physician, along with your
endo, so anything written in it is considered a doctor's order. School
nurses will need to comply or risk losing their nursing license.
2.) If your child already has an EXISTING IEP for educational
purposes, then you can attach a copy of the IHCP to the IEP as an
additional safeguard, but you cannot write classroom specifc goals
related to health conditions within an IEP.
3.) If the above tactics don't work, then set up a 504 plan, in
addition to(not in repacement of) the IHCP. This forces your school
distict to comply or lose federal funding.
Call your state board of education, they can give you the name of your
region's special needs advocate. They'll attend any meeting with you
and are there for the benefit of you and your child. Its free and , at
least may bear as much weight wih school systems as threatening a
Appropriate Accommodations Under Law
Any school receiving federal funding must accommodate
the special needs of its students in order to assure
them a "free, appropriate public education." Such
accommodation should be documented in either a
Section 504 plan or in an Individualized Education
Work with the school in establishing written
documentation of accommodation explicitly detailing
the specific needs of your child with diabetes.
Your written plan might include allowances for:
1.Eating whenever and wherever necessary.
2.Going to the bathroom or water fountain.
3.Participating fully in all extra-curricular
activities, including sports
and field trips.
4.Eating lunch at an appropriate time with enough
time to finish eating. 5.Being out sick more often
than the traditional limit. 6.Assistance with
blood glucose monitoring or insulin injections,
These are examples of some of the things to include
in an individual plan. Consult your child's doctor
when determining your individual recommendations.
As the parent or legal guardian of a child with
diabetes in the public school system, you have the
1.To request that your child be found eligible for
special services. 2.To schedule a meeting with
school officials to develop an
Individualized Education Program (IEP) under
IDEA or a Section 504 accommodation plan to
address your child's specific needs.
3.You have the right to bring experts to this
meeting to better explain
your child's diabetes management.
4.To develop an IEP or Section 504 plan to
accommodate the unique
requirements of your child. This plan may
precisely set out the types of special related
services your child needs to receive.
5.To not sign a plan unless it conforms to your
child's medical needs.
The law requires that all parties agree to the
individual plan before it is established. Be
reasonable, but stand firm.
6.To be notified and agree to any proposed changes
in your child's
plan, to be included in
7.conferences and meetings held to review
and to approve these changes before they are
8.To expect confidentiality of all information
concerning your child.
No one may see your child's records without your
written permission. (There are exceptions to
this for school personnel with legitimate
The first step is to educate the school personnel.
Use the process of developing an IEP or Section 504
plan to educate the school officials about diabetes
and how it affects your child. Often, school
personnel just do not understand and they are not
intentionally discriminating against your child.
During the process of developing your child's
individual accommodation plan, you will need to
negotiate with the school officials. If the school
personnel are wary about making accommodations, it is
important for you to know that it is your right to
ensure reasonable accommodation. However, you are
likely to come to a settlement more easily if you
attempt to understand the concerns of the school
personnel and negotiate toward an agreement suitable
to both parties.
If your child's needs are not being recognized, then
you have no choice but to file an administrative
complaint with the Department of Education in your
state. After exhausting all of your other options,
seeking protection in the courts may be necessary to
ensure that your child receives a free, appropriate
For information about diabetes:
American Diabetes Association
1660 Duke Street
Alexandria, VA 22314
For information about an Individualized Education
Program or Section 504 Accommodation Plan:
National Information Center for Children and Youth
with Disabilities P.O. Box 1492 Washington, DC 20013
For technical assistance and referrals for local
National Parent Network on Disabilities
1727 King Street, Suite 305
Alexandria, VA 22314
email @ redacted
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