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Re: [IP] in defense of "disturbed" obsessive diabetics

In a message dated 8/19/99 3:35:08 PM, email @ redacted writes:

<<I think aiming for an A1c of under 6.0 is a sign of an extremely 
disturbed individual.  That said, I would never for ONE SECOND deny one his 
or her right to obsess over blood sugars like this, but would remind everyone 
that there are NO studies that show that this type of control eliminates 
complications.  And in fact, lots of lows tend to aggravate some of the 
complications.  If you have the right gene combinations, you WILL get 
them...maybe not for 40 or 50 years, and you'll be almost dead then anyway, 
but why live in a rubber room, eating nothing but 15 carb chunks of 1975 ADA 
approved foods in that attempt???  It is IMPOSSIBLE to have blood sugars 
ALWAYS between 80 and 130, 24/7, without herculean efforts that would drive 
most normal people crazy in less than a week!  Sure you might get your A1c 
down to 5.7 the first 3 months on the pump, but will you be able to keep up 
the required diligence for the REST of your LIFE??? >>

Well, first -- I was diagnosed at 8 years old, am now 53.  I sort of hope I 
am not almost dead (wasn't feeling that way).

I agree that the relationship between tight control and complications is, 
well, complicated.  It is my impression that my tight control in the last few 
years has significantly helped my kidney function, as evidenced by the return 
to normal of protein tests.  My retinal specialist says it has helped my 
retinopathy, but that retinopathy started right after an improvement in 
control that took place after I got facile with home blood glucose 
monitoring.  The constant nausea and lack of appetite of last year has much 
improved after 10+ months of pump use, but I am not eating any meat, and very 
little fat, which are triggers for it for me, and gastroparesis doesn't seem 
very predictable anyway.

But my big reason for attempting real close to normal blood sugars is that I 
feel so much better on the days I am able to achieve them.  It doesn't, 
incidentally, necessarily mean just eating what was considered a diabetic 
diet in 1955 when I was diagnosed, because I am able to see what happens now 
when I eat a food and learn to bolus properly for it.  But foods I have 
problems with I am much more inclined to avoid than to pursue the proper 
bolus method for fear of losing that feeling of wellness that has given me so 
much more energy this year and made life seem so much more pleasant, to the 
extent of often giving me the fun sort of high.

My primary care doctor, in response to my asking for a prescription for 10 
strips a day, had mentioned obsessive (actually obsessive-compulsive) also, 
and wondered about the time spent.  I explained to her that feeling so much 
better with the "obsessive" control, I had many more usable hours to work 
with, so I was actually quite a bit ahead of the game.  

Linda Zottoli

Insulin Pumpers website http://www.insulin-pumpers.org/
for HELP or to subscribe/unsubscribe, contact: HELP@insulin-pumpers.org