[Previous Months][Date Index][Thread Index][Join - Register][Login]
  [Message Prev][Message Next][Thread Prev][Thread Next]

Re: [IP] RE: I'm not going to waste energy on hating Diabetes.


Finally a voice of reason.  Thanks for your very well written response.

mom of Scott, now 9, diagnosed at 7 and pumping with Animas R1000

----- Original Message -----
From: "Scott Strumello" <email @ redacted>
To: "Insulin Pumpers" <email @ redacted>
Sent: Friday, April 11, 2003 9:30 AM
Subject: [IP] RE: I'm not going to waste energy on hating Diabetes.

> Maybe people are getting tired of this subject, but it seems to be that
> only consensus is that there is no agreement on the subject.  To each his
> her own.
> For me, after almost 27 years (and 27 years of hearing how close a cure
is), I
> don't waste much time listening to other people (including people in the
> medical profession) who have no first-hand experience of what its like to
> with this condition 24/7/365.  To me, that is a waste of energy.
> But I will dammed if I "accept" it, nor will I accept being called
> -- naming me after a medical condition -- which is akin to calling someone
> with cancer a "cancerian".  (I still can't understand why anyone tolerates
> that, I usually try to correct people who make the mistake of referring to
> by a medical condition that I had no way of preventing.)
> I feel that acceptance fosters the attitude that this is a perfectly
> acceptable condition and its OK to have to live with it, even though it
> destroy us if we choose to ignore it.  We can and must do better than
> Acceptance of diabete is why significantly more money has been spent on
> finding cures for diseases like breast cancer and AIDS rather than on DM,
> though these conditions impact far fewer people, cost the country far
> and we now know how to prevent at least one of them from occurring in the
> first place (which cannot be said for Type 1 diabetes).
> Don't get me wrong, I do what I can with the extremely crude tools that
> currently available for managing this condition, but I'm sorry, there is
> absolutely no way I will accept it, any doctor or CDE who tries to tell me
> do otherwise will be told to keep their personal opinions to themselves.
> prefer to use my energy to raise funds or act as an advocate for JDRF,
> than welcome this with open arms into my life.  I had the opportunity to
> one of the founders of JDRF (which has grown to become the largest source
> funds for any type of medical research after the NIH) 2 weeks ago, and her
> attitude was that as long as someone out there must live with this
> there is still a lot of work that has to be done.
> Just my 2 cents.
> Scott
> Dx'd T1 9/1976 at age 7 (now age 34), pumping w/ Animas R1000 since 6/2002
for HELP or to subscribe/unsubscribe, contact: