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[IP] Diabetes Self-Management: *Parents*
I don't know if this magazine has a widespread readership on this list,
since I don't see it mentioned much, but I just caught up on the last few
issues of Diabetes Self-Management...& there are some articles here that
might really interest some of you - especially parents.
A series of articles has been running in there under the heading "For
Parents". The September/Octorber issue (told you I was behind!) is "School?
No Problem", & it lays out the information you need to share with the
child's school, supplies that should be kept on hand (& how this is commonly
handled, testing in school, handling meetings (what to say, what to expect),
& how to help your child fit in. There is a good one-page form to help you
put into writing the instructions that should be given to any adult
supervising your child, & that should definitely go into ALL substitute
folders!* I know that the author of this one used the childrenwithdiabetes
website as a resource, so some of this may look familiar to you - I still
think it's a very worthwhile read!
*Note to Parents: I say "ALL" here because of something that generally does
not happen. Even if your school system is good about sharing information
about health issues with teachers, & the classroom teacher has info on your
child included in their substitute folder, many adults who need this
information "fall through the cracks" & remain uninformed & therefore unable
to properly assist your child if needed. These may include: "specials"
teachers (music, art, gym), librarian, media specialist, custodian, bus
driver (I'm not sure what the bus drivers are given or told), playground or
lunchroom helpers, classroom aides, volunteer parents...I know this seems
like a lengthy list, but please know that your child could be in situations
where this is the adult they would need to turn to for help - those adults
need to know what his/her situation is in order to care for the child in the
best way possible. Frequently, people who substitute in any of those
positions may be completely unaware that your child is diabetic - INSIST
that information is included & flagged in ALL substitute folders &
instructions!! I say this because many schools do not recognize the need
for that - as long as it's in the classroom teacher's sub folder, it seems
okay...WRONG! That teacher is not the one with your child every minute of
the school day...the substitute gym teacher, music teacher, custodian, etc.
NEED to know as well. If this isn't the common practice in your school,
make it so - insist, fight for it, & (as Sara NH says:) Be Loud, Be Proud,
Okay, off my soapbox! To briefly (is that possible, for me?) add the other
article I wanted to mention before I got so thoroughly sidetracked - in the
January/February issue, the article is "Insulin Pump Therapy for
Kids"...you may know better than I if their information is entirely
accurate, but it looks like a very good breakdown for those considering
starting a junior pumper - the Yale program criteria for a good candidate,
the fact that age is NOT an object here, what parents & children should know
before starting, what's involved in getting started, & where you go from
there. This appears to be an excellent introduction to the idea, & provides
some good backup ammunition if the pump quest is going to be a fight.
Off for more coffee...look out!
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